My Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated on Nolan's condition. Get started by reading the introduction to our website, My Story.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.

Nolan Jon Sensintaffar was born on October 14, 2010, weighing in at 7 lbs., 4 ozs. Everything was fine until he was about 6 weeks old and began to have trouble eating. By January, he had stopped eating all together. And so began our journey...we have been in five different hospitals in four different cities and three different states and have seen countless doctors and specialists only to hear the same thing...we're not sure what's wrong...Thank you for walking along side us as we struggle to help our son. We will try to update the journal as much as possible and add pictures, too. Please leave us a note in the guestbook! We love hearing from each of you! 

Much Love,

Cody, Heather, Isaac, Griffin and Nolan


Heather Sensintaffar posted a new journal entry, "HAPPY NEW TUMMY DAY!!!".

From the day we were listed for transplant we were constantly waiting on THE ONE CALL and at any giving moment everything could change...the first month or so our heart's ... Read more

Jan Hurn signed Nolan's Guestbook.

Thank you Heather for sharing your heart with us! That was beautiful said and touching! We are so blessed to have Nolan in this family. He and his big brothers are as ... Read more

Patti Allen signed Nolan's Guestbook.

Oh Nolan! What a wonderful day for you and your family! I have yet to meet a child (or adult, for that matter) who is as brave and strong and just plain HAPPY!  I love ... Read more

Heather Sensintaffar added a new photo.

Heather Sensintaffar posted a new journal entry, "little Nolan...".

WOW!!! God definitely holds Nolan in his hands!!!! July 14th Nolan broke his Broviac line and he had to go back to the hospital...but we were able to repair it and ... Read more

Jackie Schmidt signed Nolan's Guestbook.

many prayers continue for Nolan and sweet family.  Wish we could be there with you . Love you.  Grandpa Carl $ Grandma Jackie Read more

Rick Slankard signed Nolan's Guestbook.

Papa likes seeing you smiling and having fun. Wish I could be there with you and enjoy your good day. Grandma Starla says she loves you and misses you. We hope to see you ... Read more

Heather Sensintaffar posted a new journal entry, "Cinco De Mayo!!".

We had a fun day today celebrating Cinco De Mayo! The Child Life Specialist here are fantastic. Nolan enjoyed playing all the festive games forsure!Yesterday's clinic ... Read more

Rick Slankard signed Nolan's Guestbook.

Love you little man. Papa Rick and grandma Starla are missing you and hope to see you soon. Praying for you everyday. Love you. Read more

Show more recent activity