Nolan Bontke's Journal
Written Jul 1, 2009 9:44pmDay 76. Dady 1 in rehab. We got here in quite an interesting manner, sneaked in and no one knew we were here, came with missing meds on the history sheets, spiked blood pressure, threw up, and had physical therapy. Most of that was in the last 24 hours. It has been quite a day. I wrote all about it and the little melt down I had. Then the internet access expired. So maybe I am not supposed to write all of that. The condensed version is: it was a hard day. Met all of the drs and therapists, they seem really great. Nolan threw up twice, but after 4 days off his feeding, no wonder. All those meds on an empty stomach can cause an unpleasant reaction. Now on feeding again. Replace the trach tube with a smaller one, next step is to remove the trach. Had therapy sessions, very painful and stressful for both of us. Blood pressure spiked very high, after they discovered he did not have any bp meds on his chart any where. Now he does, so that should lower. We have been at it since 5:30. Long, hard day. someone today said that sometimes getting better is actually harder. It is true. God has sent us here so we are going to be ok. We just await his blessings on us. Please pray for strength for Nolan's stomach, muscles, voice, and thoughts. This is very hard work for him. Pray that the therapists come to love him just as his friends all do. Please thank God for all the blessings He has poured out to us and continues to pour on us. There are so many needs in our life. God knows them all. Please pray that He will care for our needs and keep us safely in His care. Nolan is sleeping very peacefully afte his long stressful day. Pray for him and his therapists tomorrow.
Written Jun 30, 2009 11:02pmDady 75. I wrote a really long description of our day. Saved it and when I went to read it, found out I had lost my internet connection, so the update was lost. This is the condensed version. We started in SICU waiting to move to rehab. We began waiting at 9 and they came at 5:30. We moved in a rolling recliner in an old van. i will tell you more tomorrow. We are here at Trustpoint in Room C107. We have only met the night nurse and the RT. We will meet the others tomorrow. The RT has come to check on us several times. Hopefully they will get his meds here so I can try to pretend to sleep. He has had a long day. I know his head hurts and they messed wtih his trach, so he is not in the best state. Tomorrow they will de all the evaluations for speech, pt and ot. We will get started as soon as they get a plan. I am so ready to get him up and going. I just want to go home and sleep in my own bed wtih my husband. That would be so wonderful. Maybe I will dream about sitting outside listening to horses, crickets, frogs and other night sounds. I can dream I am on a little retreat. God has already sent us some great people. Please pray for the ones we will meet tomorrow, that they will be blessings to us. Pray that we will be blessings to all we meet. Please pray for strength for Nolan to get through this phase of the journey. Pray for muscles to remember what they are meant to do and for more alertness and clarity. I thank God for all that He has sent us on this journey. He continues to amaze me with all His love and goodness.. I will try to elaborate on some things tomorrow. Tonight, I am very tired. I know, I say that every night. I did get my little green bug fixed. Some true blessings from God came and got it to the dealership. The oil issues had to do with an oil filter. The check engine light required replacing a fan, thermostat and sensor. Kind of an expensive oil change, but it is up and running. I will deal with the tire thing tomorrow or the next day or the next. Whenever I get the energy. Thank you God for all the wonderful people you have graced our life with. Nolan is resting easy now. He has had a big day. me too.
Written Jun 30, 2009 7:25amJust a little update and apology. With all that Nolan is dealing with, my little bug's slight illness is so insignificant. I should sleep before I write. Joy comes in the morning. It always does. An amazing friend is helping me get my little green thing to the mechanic. We will pray that it is just a minor illness. Nolan's special nurse cleaned him up so I will see a shining head this morning, rather than half and half. If the little greenie is sick, we will just go back to plan x. Josh will go to Pview and get his pick up and I will drive mine. Something always works doesn't it? God seems to really want to take care of me. I still don't feel deserving, but I am so blessed and thankful. Thanks for your diligent prayers. I will update you on the move. we are just believing that it will happen today. Have a Thankful Tuesday.