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Nolan’s Story

Site created on October 16, 2009

My name is Nolan Blake. I am 11 years old and I was diagnosed with Anaplastic Medulloblastoma on 10/8/2009 and relapsed on 3/2011. This website was designed to keep my friends and family updated on my progress. You can also keep up with me on my Facebook page
https://www.facebook.com/CapsForACureNolanBlake

Nolan started vomiting occasionally around July 2009. I thought it was a little stomach virus since Nolan tends to be proned to these. Instead of getting better Nolan continued to vomit every morning which turned into everyday all day. Then came the headaches. When his pediatrician couldn't find anything wrong we were referred to a GI doctor who (Dr. Liu) ordered further test including a CT scan of the brain. His CT scan was done on October 8, 2009 which showed a brain tumor the size of a golf ball in the 4th ventricle of the brain. He had an emergency MRI within 2 hours of his CT. The MRI showed a tumor in his brain, two in his spine and a spread of leptomeningeal disease within the head and spine. The operation took place on October 13, 2009 and took about 7 hours including time for anesthesia and recovery. Dr. Reisner Nolan's neuro-surgeon was able to remove most of the main tumor the rest would have to be killed with radiation and chemo. Nolan's first spinal tap was considered negative for tumor cells. Nolan's diagnosis is "Large Cell Anaplastic Medulloblastoma" A very aggresive form of brain cancer.So far Nolan has had 44 radiation treatments and 4 1/2 years of chemo. There is no cure for relapsed medulloblastoma...We just continue to search for new chemo's and pray!We are so proud of Nolan! He continues to keep such a good attitude despite all he has to go through. He enjoys visiting his friends in the hospital, playing with the therapy dogs, watching spongebob, coloring, fishing, playing with hotwheels, watching Nascar (Carl Edwards/Aflac) and swimming. Thank you everyone for you continued support and prayers! It means so much to us!

Newest Update

Journal entry by Brittany Blake — Jun 3, 2014

Nolan's celebration of life will be at
Oak Hill Baptist church
100 lakeside drive
Williamson, GA
Saturday, June 7th at 11:00am
Outdoor pavilion
Please wear a rally for Nolan t-shirt or a slime green t-shirt. (Nolan's favorite color)

Thank you for all the continued love, prayers and support!

Brittany
I have fought the good fight, I have finished the race, I have kept the faith. (II Timothy 4:7 NKJV)

Read More of the journal posted Jun 3, 2014

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