My Story

Noah was diagnosed at the age of 4 with a rare vascular defect. His aorta was crossing through his chest, crushing his esophagus and trachea. He has undergone 3 surgeries- the most recent on March 26 at Cincinnati Children's. He still suffers from reflux, tracheomalacia and asthma.

His sister Abigail also has asthma as well as chronic abdominal pain and chronic sinus/ear infections.

Journal

Saturday, July 4, 2009 6:58 PM, CDT


GOOD GRIEF!  THE BOY DONE DID IT AGAIN...

Thursday night, at dinner, Noah had another choking episode.  It was pretty bad with his face turning red and tears welling in his eyes.  It took him a while to recover from it.  Since he was already coughing and coarse sounding it was hard to know if anything had actually happened.

But, Friday, Noah started wheezing again and his coughing grew worse.  By Friday night, he was needing neb treatments again.  After trying to figure out why he was getting worse, someone mentioned the possibilty of another aspiration.  Suddenly, it all made sense!  It looks like he done went and aspirated again.

He does not look or act "sick" so I am pretty sure there is no pneumonia.  Looks like we'll be talking to the doctors again on Monday to see if we need to be doing anything else for him right now.  His EGD is scheduled for August 17 and I am going to discuss with his pulmo to see if he needs any additional testing so we can schedule it while there. 

I am thankful that this has not turned into anything serious but it does bring home just how real the threat of aspirating is for Noah.  Of course, as always, the biggest problem remains his desire to hide his symptoms so as to avoid doctors and tests.  I have been trying to impress upon him how important it is for him to be open about what is happening so that his doctors and I can treat him appropriately.  All of this falls on the deaf ears of a 9-year-old who fears additional invasive testing or treatments.


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HOSPITAL INFORMATION

Cincinnati Children's Hospital
3333 Burnett Avenue
Cincinnati, OH 45229