Today was so exhausting (what is it about sitting around and waiting on appointments that make us so tired?) She had her sedated MRI this morning in the Tampa All Childrens Clinic (the test alone takes two hours). I am happy to say that I had a UNOFFICIAL everything looks good wink so I will sleep well tonight. Still want the official report. We have come to LOVE the MRI people at the clinic. They know Nik from the begining - even one of her favorite nurse was diagnosed with breast cancer and has completed treatment all while we have been using the facility there.... so there is a special bond and she just adores those people... They do treat her nice. After that we made a quick stop into Aunt Beckys work - we had a little time to kill before we had to hit the bridge to go to St.Pete outpt area for the other tests. The pulmonary function test did not come back so good. It appears at this point there is damage due to the chemo and or radiation. She is not at all where she needs to be. The tech said that they needed to check her hemoglobin to see if she just runs low or if she is just real low on the breathing machine. The good news is he said that the lungs can heal on their own... Please pray for that - he did confirm that this would definately contribute to her fatigue factor..... The other tests - EKG and ECHO - I really didn't get feed back from the tech at all. By that time we were ready to just go home. I did snap a few pictures - I will try to get them on here. One of the pictures is the walk way where Nik use to sit in her wheelchair and just soak up the warmth and sun whenever she was having "spa day". We use to say we would donate a bench out there cuz I would have to sit on the floor and she would sit in her chair... WELL today - they actually now have a bench there :) - the other picture looks like Nik in a little rocket - that was the pulm function test...... We did swing by to say hi to the nurses and physician assistant on the 2SW floor. They were happy to see her and still have her beautiful - bald picture hanging on their doorway. She has come so far....... Tomorrow the child will go to school - probably kicking and screaming - but going..... Penny
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