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Nico’s Story

Welcome to Nico's CaringBridge site. We've created it to keep friends and family updated. We thank you in advance for your support, words of hope, volunteering of your time, and encouragement when it matters most. Due to the ongoing costs of Nico's condition donations are also appreciated. There is an account set up at Chase Bank. You can go into any branch to donate to the "Nico Valentino Trust" or send to 221 Crest Rd, Glen Ellyn, IL 60137  if you are not able to make it to a branch and will be put in the account. 

Join us for a fundraising event May 11th at Beau Geste Salon in Barlett, IL. 

Nico James Valentino was born February 14, 2011.
He was born with Hypoplastic right heart syndrome. Hypoplastic Right Heart Syndrome is a congenital heart defect that has left Nico without a functioning right ventricle.With the right side of the heart being underdeveloped, the left side of the heart must pump blood to both the lungs and the rest of the body.  With only a half of his heart functioning, immediate medical intervention was required to save his life. Treatment of Hypoplastic Right Heart Syndrome consists of a series of heart surgeries, often spread out over several years.
The Fontan surgery is palliative not curative. Nico will eventually need a heart transplant.

Latest Journal Update

More tests

This morning Nico had an upper GI at Christ Hospital in preparation for the G-tube placement surgery that will be Thursday,May 23rd.
He will be staying at the hospital for 2-3 days for this surgery.
As always this brave little guy keeps that smile on his face. Bless you Nico