×

CaringBridge Is Funded by People Like You

Make a donation to CaringBridge

Honor Nico with a tax-deductible contribution to CaringBridge today.

Click here to make your donation.

My Story

Welcome to Nico's CaringBridge site. We've created it to keep friends and family updated. We thank you in advance for your support, words of hope, volunteering of your time, and encouragement when it matters most. Due to the ongoing costs of Nico's condition donations are also appreciated. There is an account set up at Chase Bank. You can go into any branch to donate to the "Nico Valentino Trust" or send to 221 Crest Rd, Glen Ellyn, IL 60137  if you are not able to make it to a branch and will be put in the account. 

Join us for a fundraising event May 11th at Beau Geste Salon in Barlett, IL. 



Nico James Valentino was born February 14, 2011.
He was born with Hypoplastic right heart syndrome. Hypoplastic Right Heart Syndrome is a congenital heart defect that has left Nico without a functioning right ventricle.With the right side of the heart being underdeveloped, the left side of the heart must pump blood to both the lungs and the rest of the body.  With only a half of his heart functioning, immediate medical intervention was required to save his life. Treatment of Hypoplastic Right Heart Syndrome consists of a series of heart surgeries, often spread out over several years.
The Fontan surgery is palliative not curative. Nico will eventually need a heart transplant.

Feed

Christy Tajak posted a new journal entry, "More tests".

This morning Nico had an upper GI at Christ Hospital in preparation for the G-tube placement surgery that will be Thursday,May 23rd. He will be staying at the hospital ... Read more

Christy Tajak posted a new journal entry, "More tests".

This morning Nico had an upper GI at Christ Hospital in preparation for the G-tube placement surgery that will be Thursday,May 23rd. He will be staying at the hospital ... Read more

Christy Tajak posted a new journal entry, "Great Day!!".

Thanks to all those who supported the fundraiser at Beau Geste Salon today. $2717 were raised for the Nico Valentino Fund!! Special thanks to Gianna and Sabrena for ... Read more

Christy Tajak posted a new journal entry, "Nico's fundraiser".

Nico is at Beau Geste Salon in Bartlett right now visiting with everyone who came out to support him. Thank-you so much for all your support. Come out and visit. The event ... Read more

Christy Tajak posted a new journal entry, "Nico Valentino Fundraiser".

Tomorrow is the Nico Valentino Fundraiser332 S Main St, Bartlett, IL 60103 Phone:(630) 837-3708 8am to 3pmThere is still time to make an appointment for hair or waxing ... Read more

Christy Tajak posted a new journal entry, "Support Planner".

With everything going on I have added more tasks to the support planner if you are able to help. The support planner cannot be accessed through the caring bridge app, you ... Read more

Christy Tajak posted a new journal entry, "Nico's Recovery".

Nico's recovery has had it's ups and downs. As we close in on the one month mark of his open heart Fontan surgery, we are looking at some new challenges. Nico's body is ... Read more

Christy Tajak posted a new journal entry, "From the Schwartz Family".

"We are so blessed to have such an out pouring of support, we thank you all. You have touched our hearts and made it easier to bear. Whether you made a contribution ... Read more

Christy Tajak posted a new journal entry, "Week 1 at home".

The families first trip out of the house was back to Christ Hospital to see Dr. Ilbawi's crew. Poked for labs and x-rays then a chat for an update. Lungs are clear so can ... Read more

Amy Murphy signed Nico's Guestbook.

Hope Nico is doing well!! Please call us if you need anything. You are all in our prayers, please know that we have been thinking about you! Take care! Love, Tim, Amy, ... Read more

Show more recent activity