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Nick’s Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated about Nick. Get started by reading the introduction to our website, My Story.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.



On Monday October 19, 2009 our 12 year old Nick was diagnosed with Leukemia. Specifically, Acute Lymphoblastic Leukemia T-cell or ALL T-cell.

 

About 4 weeks ago Nick developed a sore throat and swollen glands. Nick went to the local immediate care center and was prescribed an antibiotic. After 2 weeks with no improvement and his glands continuing to swell we brought him to his pediatrician for further follow up,  He was tested for mono and strep throat and a enlarged spleen noticed (which caused Nick to have to stop playing hockey).  The tests were negative. Upon another visit his liver was enlarged so his pediatrician decided to send him to a specialist for further evaluation. The specialist was a Pediatric Hematology/Oncology physician who happened to take care of Nick when he was born (Nick has a blood problem at birth that kept him in Neonatal Intensive Care for 3 weeks). Nick visited that specialist on Thursday October 15th, 2009 and a chest xray along blood work was ordered. That was done in his office and literally just a few minutes later he had identified a lymphoma on his chest. He explained this to Maria and scheduled a biopsy, bone marrow aspiration and a central line IV port placement for the next day (Friday). Later that evening, we received a call from the specialist that he just received the blood work results and there was a buildup of uric acid in his blood from the lymphoma that needed to be addressed immediately. Nick was admitted to the hospital that night and IV's were started. On Friday October 16th Nick had the biopsy, bone marrow aspiration and his port placed. He stayed in the hospital through Saturday late afternoon receiving IV fluids to improve his blood chemistry. He was discharged with a preliminary diagnosis of Hodgkins Lymphoma. Monday October 19th the lab work results came back and cancer was found in his bone marrow and lymph nodes resulting in a primary diagnosis of Leukemia. Nick was admitted that afternoon to start treatment.

Latest Journal Update

Finished

Hello Everyone,



Nick recently visited the oncologist and all was good. He
officially ended his chemotherapy and just needs to continue on oral
antibiotics for 3 more months. 



The plan is for Nick to have his central line port removed
in March and continue monthly oncology visits for blood work for the next year. He then will
gradually reduce his visit frequency to yearly and continue visits for about 10
more years. The reason he will need to be followed that long is related to his
specific cancer and the neurological issues he had.



On his last visit the Drs office had a personalized cake to
celebrate his therapy completion. His entire medical team has been so caring
and supportive that we feel blessed to have the opportunity to be cared for by
them. His two oncologists have been outstanding and his pediatrician has gone
above and beyond in making sure he had the best physicians and care available.
Each of them spent countless hours checking in and staying after hours explaining
everything to us and coming into the hospital on weekends when Nick had his
roughest days.



Since Nick’s recovery has come to an end I see these updates
ending as well. We’ll keep the account and if something of significance happens
we’ll provide an update and I think you’ll get an update alert.



Maria and I would like to say “Thank You” to each of you for
your continued interest, prayers, thoughts, fundraising and support (in so many
ways). We feel lucky to have you as family and friends!



We’ll continue to looks for ways to pay it forward, support
cancer research, Midwest Brain Tumor Center, Make-A-Wish, ST. Baldricks and so
many other causes with a mission to make a difference in the lives of pediatric
cancer patients and their family’s.



Life is fast and we all get caught in the busyness of life.
Nick’s illness caught us by surprise and helped us to learn to appreciate so
much more, take nothing for granted and have the opportunity to see the best in
people.



Thank you so much,

Andy & Maria