Welcome to Nichole's CaringBridge site. We have so much joy in our lives with Nichole that we can't help but want to share our lives with our Purple Princess. We hope you will be blessed as we are.
Please be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.
The world may see what Nichole cannot do, but we rejoice in the incredible young lady she has become. A fierce prayer warrior in her sister's image, a loyal and loving friend.
Nichole does not mind her litany of diagnoses and she is not the sum of things she cannot do. The world ay see her as a child who does not walk or talk and mistakenly assume she does not understand, but they could not be more wrong. She has a passion for reading and school and loves to encourage others. Nichole has made a powerful impact on many, many lives and we are very grateful.
Thank you for taking the time to visit. We try to update monthly, so check back when you have time.
Doug, Valerie & Nichole
After a day of Valerie & Nichole at the orthopedist's office, there's nothing really that new. I got a call from the pediatrician's office and they said the results were back from the culture Valerie took in and it grew out gram-positive for what they believe to be staph infection. They still don't know exactly what to treat her with, but they said to continue the Cipro until the sensitivity comes back.
The orthopedist did not draw anything because there is no longer any bulging area on the surface. Dr. Southworth was so good about writing up all the orders for her wheelchair and write to with everything Valerie told him was needed. If it isn't documented just right from the Dr., then it will not be paid for. He is such a kind and helpful doctor to work with. It is such a blessing to have someone willing to do everything they can to make sure Nichole gets everything she needs and it is all done right.
Thank you so much for all of your prayers, and please continue praying that the infection will be destroyed and cleared from her body.
Thank you so much!
Today Valerie is taking Nichole to see an orthopedist, Dr. Southworth. The original intent of this appointment was to find a doctor who would sign for Nichole to get a new wheelchair, since Medicare is now her major coverage instead of Medicaid, and Dr. I is not set up to prescribe for Medicare. Dr. Southworth is.
But now all of this has changed. A new wheelchair is a big thing and very important to Nichole, but we are now swimming in much more serious waters. We are in dangerous waters and Nichole is under serious attack. Many of you will remember that Nichole had a spinal fusion in November of 2010. Valerie took her to Shreveport while I stayed here, and from the very beginning Valerie was letting me know over the phone that things were not right. Nichole was experiencing serious pain because of the way they did the surgery. After she got home she began having more problems with serious pain and x-rays we had made showed the screws sticking out too far and eventually Nichole even lost the use of her legs.
Well,that is not the issue now, but she did begin having a reddened puffy area along the surgical scar down on her lower back that was an infection from down underneath the skin to the rods that were inserted along her spine as part of the fusion surgery. That is serious. The first few times this happened, she responded to the Cipro and the training stopped, as did the reddening and the swelling. But Valerie knew the infection had colonized along the rods. And that basically the only way to clean that out would be pretty radical surgery along her spine which we would not be able to get done here – if anywhere. Nichole is simply a difficult case.
Now we have a critical situation on our hands. And I am talking life and death serious. So the appointment with Dr. Southworth takes on a mission getting Dr. Southworth to get a culture/do bloodwork that will show us exactly what is attacking her from the inside and they can find an antibiotic that will destroy it.
That is our prayers. We are asking for all of you to join us in prayer for a resolution to her problem. Pray for this meeting with Dr. Southworth that it will shed new light on this dangerous situation. Pray for wisdom for all of the doctors involved. And pray that Valerie and I will have the wisdom to make the right decisions in Nichole's care. We have seen this young lady go through these episodes of the infection rearing its head and bounce back a little less each time. This time is much worse than previously.