WOW!!! Sorry for the long time between updates. Nicholas is doing fine. Me...not so much but am getting better. Have had some trouble accepting and understanding the significant decline that we found on his neuropsychological testing a few weeks ago. Routine testing showed a significant decline so further testing was done, and it confirmed the signficant decrease in working memory and processing speed. We were warned of this years ago that at some point we would see the gap between he and other peers his age increase but never knew when it would come and it seems that it is here. This year at school has been extremely difficult for all of us, especially Nicholas. Next year is going to be more difficult, and we will be working closely again with St. Jude to help us and the teachers through in order that we can do what is best for Nicholas when it comes to his education.
On a sad note, we have lost another child to this tumor a few days ago. Matthew was 13 and fought so incredibly hard. Please pray for his famiily.
Nicholas is now a Life Scout and his next rank is Eagle. He has 3 more required merit badges to get and his Eagle project. He also has to continue his service in a leadership position. He still is volunteering at the Ronald McDonald House once a month helping the organization "Alli's Way" serve dinner to the families.
He also last weekend completed the weekend long Ordeal for the Order of the Arrow. He is now a member of the National Honor Society of Scouting. Everyone is very proud of him. You have to be invited into this organization based on your leadership skills and exhibiting that you live the scout oath and scout law daily.
Since my last update, I had had the stomach virus which I was able to keep away from Nicholas, and Jared just gotten over stept.
School is on Monday and then they go back Tuesday and Wednesday and then they are out for the summer. We plan to do a lot of fun things. Jared still has not started BMX again as it has either been too wet or we had something else going on those night. We are going on another Disney Cruise in July. Our 4th one!! We love them obviously!!!
