Boy we have had a crazy few days!  Nate is doing well but is having some type of pain that is causing him to be a little bit miserable.  I guess if I just had major brain surgery 10 days ago I may not be that happy either!  We ended up in the ER on Monday morning because he started vomiting and screaming holding his head, so I immediately thought a shunt malfunction because one of the complications of surgery is if blood mixes with the spinal fluid it can cause a shunt malfunction because the fluid is now much thicker with added blood.  The CT and Shunt series (various xrays showing the the path of the tube from his head to his abdomen) looked good so they sent us home on steroids.  The theory is that Nate came off the steroids to quickly and was in pain and vomiting from internal swelling of the meninges.  Since Monday he has been doing pretty good but he is still miserable, he is such a happy guy 99.9% of the time so it kills me to see him in enough pain to not always have a smile on his face! 

We went back to neurosurgery for Nate's final visit to the fabulous, wonderful, awesome Dr. Ben Warf.  Nate was Dr. Warf's very last clinic patient he will ever see at DuPont (sniff sniff).  At one point I thought I was going to cry when we were in the room talking but I held it together and waited until I was in the car.  Ever since I found Dr. Warf after we came back from visiting Dr. Madsen at Boston Children's I have had complete trust in him and in the way he decided to treat Nate.  I can't believe he is gone and is now going to be 6 hours away instead of just 45 minutes, but it is only Boston and I should be thankful he's not out west somewhere!  We are going to continue to see Dr. Warf in Boston and we will use Dr. Campbell at DuPont should Nate need any emergency shunt revisions.  I know it will be expensive and inconvenient to travel but Warf knows Nate's brain so to me it's a no brainer...we follow him!