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Clinical trial and neurosurgeon visit

Well Nathan has now been on this clinical trial of AZD6244 twice daily everyday for almost two weeks (4/21 will be two weeks;)) So far so good, minor side effects (small rash here and there, some days a little more emotional, a little stomach discomfort in the afternoons) but all very minor and very manageable. We don't know how the tumors are being effected until the next MRI in 6 weeks but we are praying that it is keeping everything stable.


We went to see his neurosurgeon, Dr Muh, yesterday. She was very pleased with how well he looked. She had planned on coming in and talking to us about possibly going back into the brain and shaving down some of the tumor again because Nathan was doing so poorly when she saw him in January. However after seeing him this time we all agreed that reduction surgery wasn't worth the risk right now since his quality of life is so good. He still has headaches, dizziness, back pain and memory issues, but just intermittently and is really feeling good so none of us felt like surgery would be justified at this point. We did discuss if the clinical trial failed or once the clinical trial ended if they had to go back in to the brain to do surgery about doing a laser guided MRI ablasion type surgery to the brain tumor but Dr Muh said the spinal cord tumors would not be eligible for this and that it would not effect any other cancer cells that may be floating around within the brain or spinal but that this could be a future option if current treatment failed. However right now we are thanking God that Nathan is experiencing you side effects and praying that God would allow this trial to keep the tumors stable for as long as possible.


We will be participating in the Angels Among Us Walk at Duke on April 26, 2014 to raise money for the brain tumor center. Since 2009, Nathan's Faithful Fighters has raised over $19,000 to help fund research for brain and spinal cord cancer through the Preston Robert Tisch Brain Tumor Center at Duke. Please consider making a donation or joining our team. Check out the team page http://dccc.convio.net/site/TR/Angels/AngelsAmongUs?team_id=14290&pg=team&fr_id=1170 />

As you pray for our family please pray also for our friends who are battling different medical issues Dylan, Caroline, Allison, Jack, Laura, Levi, Jackson, Ella, Jaxson, Emaleigh, Nathan T, Ethan, Ezra, Issy, Mia, Micah, Cassidy, Claire, Layla, Charlotte, Andrew, Wesley, Kaiden, MacKenzie, Cullen, Ella, Yan, Ava, Cayden, MC and so many more. Also, our adult friends battling cancer or other illnesses: Grandma Lisa, Missy, Tim, Jeff, Karla, Lance, Trey, Grant, Nana and Poppie, etc.


For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future. -Jeremiah 29:11


It is the God who commanded light to shine out of darkness, who has shone in our hearts to give the light of the knowledge of the glory of God in the face of Jesus Christ. -2 Corinthians 4:6 nkjv


We want to wish everyone a Happy Easter as we remember the real reason we celebrate has nothing to do with bunnies or eggs but a resurrected savior who promises that anyone who calls upon the name of the Lord Jesus Christ will be saved. That is why we have hope and that is why we celebrate.

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Comments

9 Replies

Bonnie Ermilio
By Bonnie Ermilio
Sending LOTS of hugs and prayers to Nathan!!!!
cindy leblanc
By Miss Cindy
Dear Nathan, I am sorry for my absence. However, I have not stopped praying for you and your friends. I am so happy to hear that you are looking a feeling stronger with the trial. You can count on me to continue sending the love and prayers your way. God bless you.
Dixie Alms
By
In the post below, I see “Do not let your hearts be troubled!” Our choir sings this every year, and it is one of my most favorite songs!

Prayers for all of you but especially for Nathan as he continues this new treatment.
Michael Savage
By Michael Savage
Philippians 4:6-7 ...do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.

Praying for Nathan, family and friends.

“Do not let your hearts be troubled!”

These words of Jesus are spoken to very troubled and confused disciples. They were at the breaking point. Everything they knew was changing. They had an ominous sense of disintegration and loss. It was dark and they were in a dark night themselves. In many ways, we are those disciples now.

But the Lord Jesus shows to them a path in the time of darkness and of crisis. He begins by giving them a forthright commandment: “You are not to let your hearts be troubled.” This is not an exhortation. It is a command. As the Lord unfolds his message, he explains that in the trouble and the crisis they confront, where disaster seems inevitable and there is no solution, with the Father and the Spirit, he will be with them. The basis of their trust is not that everything will turn out well. The basis of their trust and their power to persevere will be the unshakable truth that the Spirit will be in them, and will be another Paraclete. This means to me that He will be near them, close to them. He will be in them.

I think this is perseverance coming from deep inner springs of living water found only in a life of serious and faithful prayer. Perseverance coming from a deepening interior communion of persons – of all of us with Jesus Christ crucified and risen. Perseverance coming from the deepening experience and conviction that the Father, the Son and the Holy Spirit are giving themselves to us in eternal and infinite love.

I wish you a Blessed Easter!




Praying for Nathan, family and friends.
Bonnie Ermilio
By Bonnie Ermilio
Hi. I came across Nathan's name while writing to one of the ill children I send "happy mail" to which I've been doing for over 14 years after I retired from 26 years of teaching.
It's such a good sign that Nathan's tolerating the clinical trial. I'm praying that it works for him. I'm sending Nathan LOTS of hugs and prayers.
I wish you and your family a great Easter!
Mary Beth Moore
By Mary Beth
Continuing to hold you all in my prayers!
Sarah DiGerolamo
By Sarah DiGerolamo
Happy Easter!!! We are always keeping up with you and praying for great news.
Love,
Sarah www.caringbridge.org/visit/vinnydigerolamo
Valerie Keller
By The Keller Family
Easter blessings. Good news
kim whitmer
By Kim Whitmer
Keeping all in prayer!🙏🌈😉