Nathan Charles Norman's Journal
Written Jan 28, 2009 7:44pmNathan had a fairly good day today. He got up a couple of times to play with Sarah and Matthew for about 5 - 10 minutes but then he would get really tired. He is having trouble sleeping very well and complaining of his neck hurting at the incision site. He was able to swallow a few bites of food today but spit out the rest. Nathan has been drinking a little more than yesterday but not much, only 3 wet diapers and 1 poopy diaper today. He is becoming very frustrated with his inability to communicate verbally with us as he did before. Right now only about 10% of his words are understandable where he was about 95% understandable before surgery. We are suppose to start PT/OT/Speech Therapy hopefully next week.
I fully believe that the Lord can heal our baby, if it is His will. But I also realize that our will is not always God's will. The Lord tells us in Exodus 15 that He is "the Lord who heals you." I pray that it is God's will to heal our baby boy. Please continue to unite with us in praying for Nathan's healing of this brain tumor.
Written Jan 26, 2009 8:25pmDr. Grant called tonight and said Nathan did have a low grade astrocytoma. It contained cells that were both grade 1 and grade 2. Pathology showed that the cells had a 4% growth rate, which is low, but means it may still grow. Right now the tumor is benign, but that could change. We will go back to Duke Feb 3rd for a follow up and then go back in 3 months for our next MRI. We will continue to go back every 3 months for monitoring. If any change is noted we will have to do chemotherapy.
Dr. Grant could not guarantee what will happen next. We praise God that the tumor is benign (which means slow growing and not spreading, but still cancer) at this point but we need to continue to pray because Nathan still has a 7.77 mm tumor at his brain stem that could change or grow at any time.
Some useful websites to learn more about low grade astrocytomas are:
American Brain Tumor Association
American Cancer Society
Thank you so much for all your prayers and support and please continue to pray for the tumor to go away!
Written Jan 26, 2009 11:30amNathan is still not eating or drinking much. My wife took him to the Dr. because we suspect he has Thrush. The Dr. has confirmed that he does have it. He has also been running a low grade fever which the Dr. wants us to monitor. She is not sure if it is due to a little dehydration or possibly an infection trying to emerge at which time we would need to get him back to Duke immediately.
On a positive note he has been smiling and giggling a little more today than in the past few days. He also had a very full poopy diaper this morning. Some may say that is not too exciting, but we even sniffed it:0) Not really. We were excited though.
Continue to pray that the remaining tumor is not cancerous and that God would miraculously dissolve it.
With All Our Love,
Bobby, Dawn, Sarah, Matthew, Nathan