Nathan Charles Norman's Journal
Duke starting Nathan on Everolimus
Written Jan 22, 2014 11:59amJust heard from Biologics Pharmacy, our insurance approved the Everolimus;) She said it will take a day to get the drug since they do not stock it but then they will over night to us. So Nathan will be able to get it off trial and continue treatment at Duke. Maybe this med will provide enough stability for a while. The MEK trial should open in a month or so, so if this drug doesn't stop the cancer progression then we could try the AZD trial at Duke once it opens. We are so thankful for everyone's continued prayers for our family and for God's mercy and faithfulness. Please pray that this medicine stabilizes the cancers growth and that side effects are minimal.
Pray also for our friends Dylan, Caroline, Allison, Jack, Jackson, Ella, Emaleigh, Nathan T, Ethan, Ezra, Issy, Mia, Micah, Cassidy, Claire, Charlotte, Arianna, Andrew, Wesley, Yan, MC and so many more.
"May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit." Romans 15:13
Possible treatment option for Nathan
Written Jan 19, 2014 12:53pmPlease pray as we have a possible treatment option we have been discussing this weekend with several doctors. There is a clinical trial in Oregon at Doernbecher Children's Hospital for a drug called Everolimus.
It looks like Nathan should qualify for it. We have been corresponding with a dr at Doernbecher Children's Hospital as well as Dr G at Duke. Dr G said this drug is commercially used now for other cancers and so he is going to see if the pharmaceutical company and insurance would allow him to just go ahead an d prescribe it for Nathan and us remain in treatment at Duke. If we can't then Doernbecher Children's Hospital in Oregon has the study open so we could go out there and have the required base line tests and if Nathan passes the tests ok he could start the trial. We do not know how effective it will be to his tumors but maybe it will buy some time. He will still be eligible for the MEK trial once it opens if this one fails but we hope and pray it doesn't.
Pray also for our friends Dylan, Nathan T, Ethan, Ezra, Issy, Mia, Micah, Cassidy, Claire, Wesley, Yan, MC and so many more.
Be of good courage,
And He shall strengthen your heart,
All you who hope in the Lord.
Pittsburgh trial is a no go
Written Jan 16, 2014 8:37pmBack home now and Nathan is doing well, just went to sleep. We found out this evening that Nathan is not eligible for the clinical trial in Pittsburgh. Where God closes one door He opens another so we are praying for the right clinical trial to open soon.