Nathan Charles Norman's Journal
Update on Nathan
Written Feb 10, 2014 11:45amOn our way from Duke. Dr. G has stopped the Everolimus. Some of the side effects are coming from the medicine. Some of the side effects we are not sure if they are from the tumors or if the medicine was aggravating the tumor. They are trying to move up his MRI but we do not have a date yet. He said if Nathan suddenly takes a turn for the worse bring him in through the ER and they will have an emergency MRI done. We won't know the next course of action until the MRI. AZD6244, the MEK trial, is still not open for Nathan yet. If the MRI shows progression and the MEK trial still isn't open then we may have to look at radiation. However, we are all trying to preserve the best quality of life for Nathan for as long as possible. The social worker came in and talked with us about palliative (means trying to have the best quality of life knowing that there is no cure) care and also when it gets to the point of stopping all treatment or no more treatment options available. She was very helpful and gave us many thoughts and resources. Right now we are asking everyone to pray that the tumors are not progressing and that a treatment option opens soon.
Stopping Everolimus again
Written Feb 9, 2014 10:41amNathan is struggling even more today. We had to leave church because of him having trouble breathing and abdominal pain. Dr G wants us to stop Everolimus again and bring Nathan to Duke tomorrow to see him.
Update from this week
Written Feb 8, 2014 9:55pmNathan was able to start back on his medicine (Everolimus) this past Monday, Feb 3 after having to be off for 3 days because of the fever ordeal. The first part of this week he was still feeling really good and had much more energy than last week. He has been very emotional lately though and his tics are much worse. By today, 6 days back into treatment, the fatigue has begun to set back in. We went to the store earlier and Bobby and I had to take turns carrying him the whole time or having him ride in the cart. Besides the fatigue that is coming from the medicine Nathan has been struggling with:
- lots of dizziness (we did the touch your nose and touch my finger like the dr does and at times it is really work for him to touch our finger he seems to go past it)
- lots of short term memory issues with words and writing
- keeps complaining of foot feeling like it is asleep and also ankle pain
- headaches and nausea daily
- mood swings that are very sudden and sporadic (Sarah, Matthew and Tabitha are really struggling with this because it hurts their feelings if he lashes out. That is just not like him. Then he cries when he realizes that he has spoken hateful.)
We are concerned that his tumors may not be responding to the treatment. We have emailed Dr G to see what he thinks. Please continue to pray with us for God to have his healing hand on Nathan and all of his many friends who are battling cancer.
Pray also for our friends who are battling cancer and/or different medical issues: Dylan, Caroline, Allison, Jack, Jackson, Ella, Emaleigh, Nathan T, Carter, Ethan, Ezra, Issy, Mia, Micah, Cassidy, Claire, Layla, Charlotte, Arianna, Andrew, Wesley, Kaiden, MacKenzie, Cullen, Ella, Yan, Cayden, MC and so many more. Also, Grandma Lisa, as she just came home this week from the hospital and our adult friends battling: Missy, Jeff, Karla, Lance, Nana and Poppie, Eugene, etc. Please also pray for our friends who have lost a child through cancer.
"Pain insists upon being attended to. God whispers to us in our pleasures, speaks in our consciences, but shouts in our pains. It is his megaphone to rouse a deaf world." C. S. Lewis
Please do not misunderstand as we continue to fight this battle for Nathan. We know beyond the shadow of a doubt that if God chooses not to heal Nathan here on earth He will heal him in heaven because Nathan trusts Jesus Christ as his personal savior and has chosen to follow Him. However, as parents we will go to any means to beg God to heal our son here so His glory can be revealed through Nathan as a living testimony. We pray that God will give us the strength to handle what the rest of Nathan's journey entails. Please pray along with us.
2 Corinthians 4:13-18 (NIV)
 It is written: “I believed; therefore I have spoken.” With that same spirit of faith we also believe and therefore speak,  because we know that the one who raised the Lord Jesus from the dead will also raise us with Jesus and present us with you in his presence.  All this is for your benefit, so that the grace that is reaching more and more people may cause thanksgiving to overflow to the glory of God.  Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day.  For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.  So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal.
Update from www.caringbridge.org/visit/nathannorman