Nathan Charles Norman's Journal
Written Nov 7, 2013 6:25pmWe were going to wait until next week but we have so much news we want to share. First, the MRI on Monday did show that the tumors appear to be stable still (cancer there but not growing), which is what we had hoped. Today we spoke to Dr Grant at Stanford and he shared with us several ideas that his team had so we are going to work with Duke to see if they will agree to their recommendations. Dr Grant said they really wanted to persevere the best quality of life for Nathan and that his brain and spinal cord tumor cause him to be medically fragile in the sense that when tumor progression occurs symptoms become and very quickly and quality of life is altered quickly. He recommends that when chemo ends the first of the year to have the MRI scans every 6 weeks as opposed to 12. If tumor progression occurs they recommend a type of fractionated radiation (which may be able to happen at Duke) or Proton Beam Therapy which they do in Massachusetts.
Today Nathan had his appointment with his neuro-ophthalmologist, Dr El-Dairi. She was so impressed with his ability to complete all the testing and visual fields tests that she required. His eyes, nerve and the pressure in his eyes looked great. Then she went on to say she noticed no nystagmus. He had had nystagmus since before he was diagnosed with cancer and that is one of the symptoms of his tumor. We are praying that God is just removing all the cancer from his little body but either way we praise him for the relief given to Nathan. He will be starting back on chemo, Temodar and Etoposide, next week so we are praying for it to go well. Thank you all for your continued prayers.
Please say a special prayer for Claire, Cassidy, Ethan, Emaleigh and Dylan tonight.
1 Not to us, O LORD, not to us but to your name be the glory, because of your love and faithfulness.
Psalm 143:1 (#10 of 15 Bible Verses about God's Faithfulness)
1 O LORD, hear my prayer, listen to my cry for mercy; in your faithfulness and righteousness come to my relief
22 Because of the LORD's great love we are not consumed, for his compassions never fail. 23 They are new every morning; great is your faithfulness.
Written Nov 5, 2013 7:00pmNathan only had part of his MRI yesterday. He just had the part without contrast so we do not have the full scan like we usually have. However, the part of the scan that was done of the brain and spine appeared to still be stable. The plan is to rescan Jan 6th. Nathan just finished his 3 week cycle of Revlimid last night. He is suppose to start Temodar and Etoposide next week. We still have his neuro-ophthamology appt this Thursday and the neurosurgeon, Dr. Muh, appt next week. We will update next week after his appt with Dr. Muh. Dr. Grant emailed us today from Stanford and said that him and his team are checking on some protocols and he is suppose to call us tomorrow.
Please continue to pray for all the children who battle with cancer or side effects from cancer every day: Nathan T., Cassidy, Carter, Mary Catherine, Ezra, Claire, Ella, Tyler, Ethan, Ella, Emaleigh, Vincent, Stella, Jaxson, Adrianna, Aidan, Sarah, Wesley, Charlotte, Jack, and sooooo many more. Please say a special prayer for our friend Dylan as he has battled cancer for many years and is in the hospital right now with several complications. He is such a sweet and brave young man.
Thank you to all who have been and continue to pray. God is so good and He is our strength and portion. "For our light affliction, which is but for a moment, is working for us a far more exceeding and eternal weight of glory." - 2 Corinthians 4:17
Special thanks to Liberty Christian Academy (LCA) in Lynchburg, VA for helping out with Hope for Tomorrow's Christmas bag drive for the local hospitals. This year along with collecting toys and Bibles to take to the hospitals, LCA is also helping to raise awareness for pediatric cancer by making this year's theme, Operation #GoGold. Thank you for all you are doing and for allowing Nathan to be made an honorary football captain at the game last weekend and allowing the kids to come out on the field.
Written Nov 3, 2013 7:23pmNathan had his MRI tomorrow, total brain and spine. He will be doing this unsedated, it takes about 2 hours. Bobby and I will be with Nathan and my mom is coming to help with Sarah, Matthew and Tabitha. We will see Dr G tomorrow and should have some results by afternoon, if all goes well. Then we will see the neuro-ophthalmologist Thursday and next week the new neurosurgeon, Dr Muh.
Nathan has one more day on this cycle of chemo and then a week break before the next cycle. He only had a few more months before we have to stop these three chemo drugs. Stanford in Ca will be having their tumor board review Nathan's case tomorrow to see if he is eligible for any treatments out there (His neurosurgeon, Dr Grant, is now out there and has some promising thoughts). Dana Farber in Boston has Nathan's case on their books to review as well. Last week we took him to the elders of our church and had him prayed over. We know that The Lord can heal him directly or indirectly through treatments and we are just really praying he will.
For He Himself has said, “I will never leave you nor forsake you.”
“With men this is impossible, but with God all things are possible.”
Commit your way to the Lord, trust also in Him, and He shall bring it to pass.