Nathan Charles Norman's Journal
Update on Nathan
Written Mar 1, 2014 6:41amWe heard from Duke Friday regarding the clinical trial for AZD6244 and they are hoping the tissue sample slides will be ready by Monday to send to Boston. From there it will take about 10 days for them to determine Nathan's placement in the clinical trial. He has had a lot more energy then he had when on the other medicine but still gets dizzy and has weakness at times in legs/feet and hands/arms. His tics are much worse at times and he has been complaining of upper back pain but overall he has still been pushing through and trying to enjoy each day. This past week during ice skating lessons for the kids he actually went out without his wheelchair again. He had to come off the ice here and there but did great! He is so strong and brave and just tries to enjoy each day.
Bobby, Matthew, Nathan and I are shaving our heads to raise money for childhood cancer research! Childhood cancer research is extremely underfunded. So we decided to do something about it by raising money for cures. We have signed up to shave our heads on March 21 @ Lynchburg College with stbaldricks.org
Now we need your help! Will you sign up to shave your head too or make a donation? Hair grows back, kids don't. Every dollar makes a difference for the thousands of infants, children, teens, and young adults fighting childhood cancers. St Baldricks sends all their funding specifically for pediatric cancer research.
Our other kiddos are doing great. Matthew and Sarah have been busy with school work and ice skating. We are so proud of Sarah because for the first time she went on a weekend youth retreat with our church. Many kids her age like to spend the night away from home but our kids are not like other kids. We love to be together as a family and Sarah has for the past couple of years not wanted to be away from Nathan in case something happened. This was a huge step of faith for her and we are so proud of her and thankful that God gave her the strength to step out and go on a retreat without us.
Matthew and Nathan are just best buddies with each other. It is so cute because even though they are only 17 months apart, Matthew is a foot taller than him. They are almost inseparable.
Tabitha is doing good. She had a virus earlier in the week but is doing better now. We have had several people ask how she is doing since she had several health issues last year. She still has fevers every few days but the drs believe it is an autoimmune disorder. She has been checked for everything from cancer to tick borne illnesses and everything has come back fine. They said she may eventually grow out of it.
Pray also for our friends who are battling different medical issues Dylan, Caroline, Allison, Jack, Jackson, Ella, Emaleigh, Nathan T, Ethan, Ezra, Issy, Mia, Micah, Cassidy, Claire, Layla, Charlotte, Arianna, Andrew, Wesley, Kaiden, MacKenzie, Cullen, Ella, Yan, Ava, Cayden, MC and so many more. Also, our adult friends battling cancer or other illnesses: Grandma Lisa, Missy, Jeff, Karla, Lance, Trey, Nana and Poppie, etc.
"Hope is more than optimism. It is the deep certainty that God is in control and God is good." - Letters to God Devotion
Trust in him at all times, O people; pour out your hearts to him, for God is our refuge. -Psalm 62:8
The other day at church a young lady shared her testimony and how she almost lost her life but God saved her and therefore she shares her testimony with others. The verse God placed on her heart was "I will not die; instead, I will live to tell what the Lord has done." (Psalms 118:17 NLT) We pray this for Nathan. That he would live to continue to be a light and testimony for Jesus. The same with Sarah, Matthew and Tabitha, that whatever they grow to do in life they would honor and glorify Jesus above all.
Preliminary MRI report not as good as we originally thought
Written Feb 22, 2014 9:34pmQuick update: Nathan has been feeling pretty well the last few days. He has had some dizziness and leg pain but overall has been full of energy. However, today we finally received the preliminary radiology report on his MRI on Thursday, it was not exactly as good as we had hoped. The brain tumors do look stable compared to the January MRI and the one spinal cord tumor on the T9-T10 still appears stable but now they see what appears to be possibly a second tumor in the spine at the T5 – T6 area. We are still pushing ahead for the clinical trial. We are going to contact the neurosurgeon on Monday and see what she thinks in regards to the MRI because this was an area that they have never seen anything at before, including January's scan.
"Find rest, O my soul, in God alone; my hope comes from him. He alone is my rock and my salvation; he is my fortress, I will not be shaken." -Psalm 62:5-6
MRI stable and clinical trial ready we just need to qualify
Written Feb 20, 2014 3:06pmThank you all for your prayers because God is answering them!!!! Nathan had his MRI today. He did great!!! He was sooooo brave! Dr G said the tumors look stable, although we do not have the official radiology report just yet. He also said the clinical trial will open tomorrow;) Please pray that Nathan will qualify. They are sending off his tissue and we have to wait to hear back on it. The next step is to have lab work, EKG and ECHO done then we will know if he qualifies. This process may take 2-3 weeks. Thank you all for your continued prayers!!!! Please continue to flood the gates of heaven for Nathan and others battling. Please also pray today for Yan, Dylan, Ethan, Ezra, Cullen, Caroline, Micah, Cayden, Kaiden, Claire, Ella, Karla, Jeff, Missy, Lance and Ava.
Grandma Lisa sat with Sarah, Matt and Tabby while we were back with Nathan. The kids did wonderful! We also had one of our police friends and his family, from Massachusetts who were in NC for vacation, come by to spend the day with us at the hospital. We are so thankful for the encouraging texts, emails, calls and messages today. Please continue your prayers.
In “When it Hurts Too Much To Cry,” Jerry Falwell wrote: “The Children of God do suffer from time to time. But it doesn’t mean that God has forgotten us. We need to remember that God’s love and mercy and his ministering angels are usually much closer to us when we are in pain and in deep spiritual need than at those times when we are feeling spiritually strong.” — Dr. Jerry Falwell, Sr.