Update on Nathan
Mar 1, 2014 6:41amWe heard from Duke Friday regarding the clinical trial for AZD6244 and they are hoping the tissue sample slides will be ready by Monday to send to Boston. From there it will take about 10 days for them to determine Nathan's placement in the clinical trial. He has had a lot more energy then he had when on the other medicine but still gets dizzy and has weakness at times in legs/feet and hands/arms. His tics are much worse at times and he has been complaining of upper back pain but overall he has still been pushing through and trying to enjoy each day. This past week during ice skating lessons for the kids he actually went out without his wheelchair again. He had to come off the ice here and there but did great! He is so strong and brave and just tries to enjoy each day.
Bobby, Matthew, Nathan and I are shaving our heads to raise money for childhood cancer research! Childhood cancer research is extremely underfunded. So we decided to do something about it by raising money for cures. We have signed up to shave our heads on March 21 @ Lynchburg College with stbaldricks.org
Now we need your help! Will you sign up to shave your head too or make a donation? Hair grows back, kids don't. Every dollar makes a difference for the thousands of infants, children, teens, and young adults fighting childhood cancers. St Baldricks sends all their funding specifically for pediatric cancer research.
Our other kiddos are doing great. Matthew and Sarah have been busy with school work and ice skating. We are so proud of Sarah because for the first time she went on a weekend youth retreat with our church. Many kids her age like to spend the night away from home but our kids are not like other kids. We love to be together as a family and Sarah has for the past couple of years not wanted to be away from Nathan in case something happened. This was a huge step of faith for her and we are so proud of her and thankful that God gave her the strength to step out and go on a retreat without us.
Matthew and Nathan are just best buddies with each other. It is so cute because even though they are only 17 months apart, Matthew is a foot taller than him. They are almost inseparable.
Tabitha is doing good. She had a virus earlier in the week but is doing better now. We have had several people ask how she is doing since she had several health issues last year. She still has fevers every few days but the drs believe it is an autoimmune disorder. She has been checked for everything from cancer to tick borne illnesses and everything has come back fine. They said she may eventually grow out of it.
Pray also for our friends who are battling different medical issues Dylan, Caroline, Allison, Jack, Jackson, Ella, Emaleigh, Nathan T, Ethan, Ezra, Issy, Mia, Micah, Cassidy, Claire, Layla, Charlotte, Arianna, Andrew, Wesley, Kaiden, MacKenzie, Cullen, Ella, Yan, Ava, Cayden, MC and so many more. Also, our adult friends battling cancer or other illnesses: Grandma Lisa, Missy, Jeff, Karla, Lance, Trey, Nana and Poppie, etc.
"Hope is more than optimism. It is the deep certainty that God is in control and God is good." - Letters to God Devotion
Trust in him at all times, O people; pour out your hearts to him, for God is our refuge. -Psalm 62:8
The other day at church a young lady shared her testimony and how she almost lost her life but God saved her and therefore she shares her testimony with others. The verse God placed on her heart was "I will not die; instead, I will live to tell what the Lord has done." (Psalms 118:17 NLT) We pray this for Nathan. That he would live to continue to be a light and testimony for Jesus. The same with Sarah, Matthew and Tabitha, that whatever they grow to do in life they would honor and glorify Jesus above all.
Guestbook signed 0 times today
We cherish your messages. Take a moment to write a note in our guestbook or read entries from other visitors.
Nathan Charles's CaringBridge site is made possible through donations. You can make a donation to CaringBridge.