1/20/09 - surgery to resect part of the tumor (55%)
March 2009 - Aug 2010 chemo with Carboplatin
Oct 21, 2011 brain tumor progressed and one inside of the spinal cord (neuroglial)
10/31/11 Surgery to resect part of spinal cord tumor
Nov/Dec 2011 - March/April 2011 chemo with Vinblastine & biweekly Avastin
9/4/12 - brain and spinal cord tumor progresses
9/12/12 - started new chemo Temodar and Etoposide
10/11/12 - started Revlimid
We have 4 children: Sarah, who is 10 ; Matthew, who is 7; Nathan, who is 6 years old; and Tabitha, who is 3 year old. Nathan was born on Dec 28, 2006. He began having seizures just before his 1st birthday on Dec 24, 2007. We have had multiple EEG's and a CT scan that were all normal. The doctors believed he had BPVC (a type of childhood migraine & vertigo disorder). In October 2008, his seizures began to happen more frequently. Where he used to have them once or twice every few months, he began having 10 - 15 a month. The Pediatric Neurologist sent us for a MRI on January 14, 2009. It was suppose to be very routine and they did not expect to find anything. However, just a few hours after his MRI we received the devastating call that Nathan had a tumor on his cerebellum that went over into the peduncle. We were sent to Duke on January 16, 2009 to see a Pediatric Neurosurgeon, Dr. Grant, who said we needed to set up surgery right away. On Tuesday, January 20, 2009, Nathan went into surgery to remove the brain tumor. Dr. Grant was able to remove a portion of the tumor but had to leave about 45% of the tumor. Pathology reports show that the tumor is a low-grade astrocytoma, both grade 2 (Brain Cancer). The tumor started to grow as of an MRI on 3/5/09. So Nathan had an InfusaPort placed in his chest on 3/11/09 and we started chemo on 3/12/09. The chemo is to try and keep the tumor stable for as long as possible. We are still praying for a miracle and that God will remove the tumor. Nathan was off of chemo from Aug 2010 until October 21, 2011 when an MRI revealed a 3 mm increase in growth on the brain as well as a tumor inside of the spinal cord (neuroglial tumor). He had surgery to remove most of the spinal cord tumor on 10/31/2011 and began chemo with Vinblastine on 11/14/2011 and Avastin on 12/14/2011. Both meds had to stop in Spring 2012 because his quality of life had declined. The cancer progressed again in Sept 2012. On 9/4/12 both the brain tumor and spinal cord tumor showed growth. Started chemo with Temodar and Etoposide 9/12/12 and started a third drug Revlimid Oct 2012. These are just to try and stabilize the tumors but will not get rid of the cancer. It is just to try and buy time. While there are many things that cancer does, there are many things that cancer cannot do:
Cancer is so limited
Yet in all these things
It cannot cripple love, it cannot alter hope
We are more than conquerors through Him who loved us.
It cannot corrode faith, it cannot destroy peace
For I am persuaded that neither death nor life...
It cannot kill friendship, it cannot suppress memories
Nor principalities, nor powers, nor things present, nor things to come, nor height or depth
It cannot silence courage, it cannot invade the soul
Nor any created thing shall be able to separate us from the love of God,
It cannot steal eternal life, it cannot conquer the spirit
Which is in Christ Jesus our Lord. - Romans 8:37-39
written by: anonymous
Dec 10, 2013 6:29pmAfter a busy few weeks preparing for and delivering Christmas gifts to various hospitals we went out of town for a few days. Since 2010 our family has taken the kids to the Great Wolf Lodge for 2 nights as the kids main Christmas present. It is just a time of fun and memories for our kids. We always cherish the time we have together and this year we took my (Dawn's) mom with us. Sarah, Matthew, and Nathan played so well together and Tabitha was so brave and tried all kinds of new water rides. Tomorrow we will have Nathan's labs checked to see if he can start his next 21 day course of chemo. He will go back to Duke January 5 - 7 for his next MRI and visit with his oncologist and neurosurgeon.
Please pray for all the other kiddos that are battling cancer or other medical issues right now: Dylan, Charlotte, Cassidy, MC, Sarah N, Tyler, Carter, Ezra, Nathan T., Claire, Ethan, Emaleigh, Jackson, Harwoods, Wesley, Issy, MacKenzie, Cullen, Cayden and many more.
Hope for Tomorrow (www.hope4tomorrow.org), our 501c3 finished delivering our Christmas bags for this year. We are so thankful for the help of so many who made this years Christmas project a reality. LCA for helping to collect presents and even with our large delivery to Duke of over 600 Christmas bags and Bibles. Deliveries were made to Duke, UVA, Carilion, LGH, Richmond, two hospitals in Northern VA, Ronald McDonald homes in Charlottesville, Roanoke and Durham. In all it was over 1230 Christmas bags that were delivered as well as close to 1000 Bibles. Also, last week our organization was able to host our 2nd Annual Pediatric Cancer Christmas Party for families in and around our area. It is such a blessing to be part of such a wonderful group of people. Below are a few of the recent articles of what all Hope for Tomorrow has been up to. You can also learn more at www.hope4tomorrow.org
We want to thank all of you who continue to keep our family in your prayers. We probably will not post again until after Christmas so we would like to wish everyone a Merry Christmas!!! May the Lord bless you with His love, peace, and joy.
"This is how Jesus the Messiah was born. His mother, Mary, was engaged to be married to Joseph. But before the marriage took place, while she was still a virgin, she became pregnant through the power of the Holy Spirit. Joseph, her fiancé, was a good man and did not want to disgrace her publicly, so he decided to break the engagement quietly. As he considered this, an angel of the Lord appeared to him in a dream. “Joseph, son of David,” the angel said, “do not be afraid to take Mary as your wife. For the child within her was conceived by the Holy Spirit. And she will have a son, and you are to name him Jesus, for he will save his people from their sins.” All of this occurred to fulfill the Lord’s message through his prophet: “Look! The virgin will conceive a child! She will give birth to a son, and they will call him Immanuel, which means ‘God is with us.’” (Matthew 1:18-23 NLT)
Also, Luke 2:1-20 (http://www.biblegateway.com/passage/?search=Luke+2%3A1-20&version=NIV)
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