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Nathan Charles’s Story

We have 4 children: Sarah, who is 12; Matthew, who is 9; Nathan, who is 8 years old; and Tabitha, who is 5 years old. Nathan was born on Dec 28, 2006. He began having seizures just before his 1st birthday on Dec 24, 2007. We have had multiple EEG's and a CT scan that were all normal. The doctors believed he had BPVC (a type of childhood migraine & vertigo disorder). In October 2008, his seizures began to happen more frequently. Where he used to have them once or twice every few months, he began having 10 - 15 a month. The Pediatric Neurologist sent us for a MRI on January 14, 2009. It was suppose to be very routine and they did not expect to find anything. However, just a few hours after his MRI we received the devastating call that Nathan had a tumor on his cerebellum that went over into the peduncle. We were sent to Duke on January 16, 2009 to see a Pediatric Neurosurgeon, Dr. Grant, who said we needed to set up surgery right away. On Tuesday, January 20, 2009, Nathan went into surgery to remove the brain tumor. Dr. Grant was able to remove a portion of the tumor but had to leave about 45% of the tumor. Pathology reports show that the tumor is a low-grade astrocytoma, both grade 2 (Brain Cancer). The tumor started to grow as of an MRI on 3/5/09. So Nathan had an InfusaPort placed in his chest on 3/11/09 and we started chemo on 3/12/09. The chemo is to try and keep the tumor stable for as long as possible. We are still praying for a miracle and that God will remove the tumor. Nathan was off of chemo from Aug 2010 until October 21, 2011 when an MRI revealed a 3 mm increase in growth on the brain as well as a tumor inside of the spinal cord (neuroglial tumor). He had surgery to remove most of the spinal cord tumor on 10/31/2011 and began chemo with Vinblastine on 11/14/2011 and Avastin on 12/14/2011. Both meds had to stop in Spring 2012 because his quality of life had declined. The cancer progressed again in Sept 2012. On 9/4/12 both the brain tumor and spinal cord tumor showed growth. Started chemo with Temodar and Etoposide 9/12/12 and started a third drug Revlimid Oct 2012. These are just to try and stabilize the tumors but will not get rid of the cancer. It is just to try and buy time. January 6, 2014 an MRI showed that the cancer is progressing. The brain tumor is enhancing with more active blood vessels and there appears to be a second lesion in the brain. On Jan 23, 2014 Nathan started off trial Everolimus daily then had to stop 2/8/14 due to complications. February 20, 2014 showed another spinal lesion on the T5-T6. On April 7, 2014 Nathan was able to get into the Phase II clinical trial of AZD6244 through Duke University which he is still on now. While there are many things that cancer does, there are many things that cancer cannot do:Cancer is so limitedYet in all these thingsIt cannot cripple love, it cannot alter hopeWe are more than conquerors through Him who loved us.It cannot corrode faith, it cannot destroy peaceFor I am persuaded that neither death nor life...It cannot kill friendship, it cannot suppress memoriesNor principalities, nor powers, nor things present, nor things to come, nor height or depthIt cannot silence courage, it cannot invade the soulNor any created thing shall be able to separate us from the love of God,It cannot steal eternal life, it cannot conquer the spiritWhich is in Christ Jesus our Lord. - Romans 8:37-39written by: anonymous

View Nathan's video at http://www.youtube.com/watch?v=UHfMIJsdssM

Latest Journal Update

Update

Thank you all for your continued prayers. Our family is still on the mends from the flu but today was a better day. Fevers are much lower than they have been and a little more energy. Hopefully in a day or two we will be back to normal. Now my poor mom, Lisa Kyle McCormick has it as well so keep her in your prayers.


I have to just say that we absolutely love Nathan's oncologist, Dr. G. Since Nathan began to get sick over the weekend we have been in communication every day so he could keep up with how Nathan was feeling. I had not yet texted him today and earlier this afternoon he texted wanting to check on Nathan. Now mind you this man is one of the top neuro-oncologist in I believe not only America but the world. He has so many patients and families but he treats every child as if they were his own. We can call or text him anytime day or night with concerns for Nathan and he gets right back with us. God uses him in ways he does not even realize. Here is a picture of Nathan and Dr. G from back in the fall at one of his Duke trips. We are praying we all get rid of the flu this week because Nathan goes back to Duke next Monday, February 9th for his labs and next 28 days worth of his clinical trial. Once again thank you all for the prayers and encouragement while we have been getting well. It means so much!
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Comments

10 Comments

Kevin Mahoney
By CBP Kevin
My family is praying for Nathan (and his friends) daily
Madison Tucker
By Madison
You are so cute and I love you!! Even tho I'm 10 years old I mean you are such a trooper!
Linda Snead
By Linda Snead
Praise GOD for the blessings in your family and this great doctor! So glad the family is on the mend and feeling better! Prayers to all!
vada lyons
By Miss Vada
So glad you're starting to feel better. We love you all!
Carol McDonald
By Carol McDonald
What a blessing to have Dr. G! Continuing to pray for all of you and for
the results of Nathan's tests next Monday!
Lance Plyter
By Plyters
What a blessing, those kinds of drs do not come often. Praying for a good report.
Cindy Spear
By Cindy Spear
What a blessing to have such a caring doctor! Praying for Nathan and your entire family.
Michael Savage
By Michael Savage
Praying always
kim whitmer
By Kim Whitmer
Keeping you all in prayer .. Even Dr. G that he can continue to provide amazing care to Nathan and many others!!
Connie Wolkowicz
By
What a blessing Dr. G. is. I have shared with all my friends how well Nathan is doing. We are praying that now this flu will go away and especially so he can continue his treatments.