My Story

We have 4 children: Sarah, who is 11; Matthew, who is 8 1/2; Nathan, who is 7 years old; and Tabitha, who is 4 years old. Nathan was born on Dec 28, 2006. He began having seizures just before his 1st birthday on Dec 24, 2007. We have had multiple EEG's and a CT scan that were all normal. The doctors believed he had BPVC (a type of childhood migraine & vertigo disorder). In October 2008, his seizures began to happen more frequently. Where he used to have them once or twice every few months, he began having 10 - 15 a month. The Pediatric Neurologist sent us for a MRI on January 14, 2009. It was suppose to be very routine and they did not expect to find anything. However, just a few hours after his MRI we received the devastating call that Nathan had a tumor on his cerebellum that went over into the peduncle. We were sent to Duke on January 16, 2009 to see a Pediatric Neurosurgeon, Dr. Grant, who said we needed to set up surgery right away. On Tuesday, January 20, 2009, Nathan went into surgery to remove the brain tumor. Dr. Grant was able to remove a portion of the tumor but had to leave about 45% of the tumor. Pathology reports show that the tumor is a low-grade astrocytoma, both grade 2 (Brain Cancer). The tumor started to grow as of an MRI on 3/5/09. So Nathan had an InfusaPort placed in his chest on 3/11/09 and we started chemo on 3/12/09. The chemo is to try and keep the tumor stable for as long as possible. We are still praying for a miracle and that God will remove the tumor. Nathan was off of chemo from Aug 2010 until October 21, 2011 when an MRI revealed a 3 mm increase in growth on the brain as well as a tumor inside of the spinal cord (neuroglial tumor). He had surgery to remove most of the spinal cord tumor on 10/31/2011 and began chemo with Vinblastine on 11/14/2011 and Avastin on 12/14/2011. Both meds had to stop in Spring 2012 because his quality of life had declined. The cancer progressed again in Sept 2012. On 9/4/12 both the brain tumor and spinal cord tumor showed growth. Started chemo with Temodar and Etoposide 9/12/12 and started a third drug Revlimid Oct 2012. These are just to try and stabilize the tumors but will not get rid of the cancer. It is just to try and buy time. January 6, 2014 an MRI showed that the cancer is progressing. The brain tumor is enhancing with more active blood vessels and there appears to be a second lesion in the brain. On Jan 23, 2014 Nathan started off trial Everolimus daily then had to stop 2/8/14 due to complications. February 20, 2014 showed another spinal lesion on the T5-T6. On April 7, 2014 Nathan was able to get into the Phase II clinical trial of AZD6244 through Duke University which he is still on now. While there are many things that cancer does, there are many things that cancer cannot do:Cancer is so limitedYet in all these thingsIt cannot cripple love, it cannot alter hopeWe are more than conquerors through Him who loved us.It cannot corrode faith, it cannot destroy peaceFor I am persuaded that neither death nor life...It cannot kill friendship, it cannot suppress memoriesNor principalities, nor powers, nor things present, nor things to come, nor height or depthIt cannot silence courage, it cannot invade the soulNor any created thing shall be able to separate us from the love of God,It cannot steal eternal life, it cannot conquer the spiritWhich is in Christ Jesus our Lord. - Romans 8:37-39written by: anonymous
View Nathan's video at http://www.youtube.com/watch?v=UHfMIJsdssM

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Bobby and Dawn Norman posted a new journal entry, "September is Pediatric Cancer Awareness Month".

Today is another milestone for Nathan. In the past two days he has lost his two front teeth. This is a milestone we never knew whether or not we would reach when he began ... Read more

Bobby and Dawn Norman added a new photo.

Bobby and Dawn Norman added a new photo.

Carol McDonald signed Nathan Charles's Guestbook.

I can't even imagine all you've gone through and continue to go through yet you continue to inspire others with your amazing, unwaivering faith -- to God be the Glory!  ... Read more

Bobby and Dawn Norman posted a new journal entry, "Duke appt".

We have had an interesting past few days. Sarah broke her foot on Friday while chasing Nathan around playing in the kitchen and she fell off of a chair. Today, Nathan saw ... Read more

Bobby and Dawn Norman added a new photo.

Bobby and Dawn Norman posted a new journal entry, "Update on Tabitha".

Update on Tabby- We are seeing one of the oncologist at Duke on Monday after Nathan's appointment with Dr. G on Tabitha. Tabitha has seen Dr Sun before but she will not ... Read more

Bobby and Dawn Norman added a new photo.

Carol McDonald signed Nathan Charles's Guestbook.

Please know I'm praying for Tabitha's tests today and Nathan's on the 25th.  PLEASE tell Nathan that people haven't forgotten about him!  I haven't met any of ... Read more

The Kirk Family, Lynchburg, VA signed Nathan Charles's Guestbook.

Please let Nathan know that we never could forget him and that we continue to pray for all of you regularly.  May God richly bless you all.Love,The Kirk Family Read more

Miss Julie signed Nathan Charles's Guestbook.

Dear Nathan:We haven't met.  I live in Kansas.  I'm a grandmother with two cats and one dog.  I have a lot of aches and pains and I know one of these days I will get to ... Read more

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