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Nathan Charles’s Story

We have 4 children: Sarah, who is 11; Matthew, who is 8 1/2; Nathan, who is 7 years old; and Tabitha, who is 4 years old. Nathan was born on Dec 28, 2006. He began having seizures just before his 1st birthday on Dec 24, 2007. We have had multiple EEG's and a CT scan that were all normal. The doctors believed he had BPVC (a type of childhood migraine & vertigo disorder). In October 2008, his seizures began to happen more frequently. Where he used to have them once or twice every few months, he began having 10 - 15 a month. The Pediatric Neurologist sent us for a MRI on January 14, 2009. It was suppose to be very routine and they did not expect to find anything. However, just a few hours after his MRI we received the devastating call that Nathan had a tumor on his cerebellum that went over into the peduncle. We were sent to Duke on January 16, 2009 to see a Pediatric Neurosurgeon, Dr. Grant, who said we needed to set up surgery right away. On Tuesday, January 20, 2009, Nathan went into surgery to remove the brain tumor. Dr. Grant was able to remove a portion of the tumor but had to leave about 45% of the tumor. Pathology reports show that the tumor is a low-grade astrocytoma, both grade 2 (Brain Cancer). The tumor started to grow as of an MRI on 3/5/09. So Nathan had an InfusaPort placed in his chest on 3/11/09 and we started chemo on 3/12/09. The chemo is to try and keep the tumor stable for as long as possible. We are still praying for a miracle and that God will remove the tumor. Nathan was off of chemo from Aug 2010 until October 21, 2011 when an MRI revealed a 3 mm increase in growth on the brain as well as a tumor inside of the spinal cord (neuroglial tumor). He had surgery to remove most of the spinal cord tumor on 10/31/2011 and began chemo with Vinblastine on 11/14/2011 and Avastin on 12/14/2011. Both meds had to stop in Spring 2012 because his quality of life had declined. The cancer progressed again in Sept 2012. On 9/4/12 both the brain tumor and spinal cord tumor showed growth. Started chemo with Temodar and Etoposide 9/12/12 and started a third drug Revlimid Oct 2012. These are just to try and stabilize the tumors but will not get rid of the cancer. It is just to try and buy time. January 6, 2014 an MRI showed that the cancer is progressing. The brain tumor is enhancing with more active blood vessels and there appears to be a second lesion in the brain. On Jan 23, 2014 Nathan started off trial Everolimus daily then had to stop 2/8/14 due to complications. February 20, 2014 showed another spinal lesion on the T5-T6. On April 7, 2014 Nathan was able to get into the Phase II clinical trial of AZD6244 through Duke University which he is still on now. While there are many things that cancer does, there are many things that cancer cannot do:Cancer is so limitedYet in all these thingsIt cannot cripple love, it cannot alter hopeWe are more than conquerors through Him who loved us.It cannot corrode faith, it cannot destroy peaceFor I am persuaded that neither death nor life...It cannot kill friendship, it cannot suppress memoriesNor principalities, nor powers, nor things present, nor things to come, nor height or depthIt cannot silence courage, it cannot invade the soulNor any created thing shall be able to separate us from the love of God,It cannot steal eternal life, it cannot conquer the spiritWhich is in Christ Jesus our Lord. - Romans 8:37-39written by: anonymous
View Nathan's video at http://www.youtube.com/watch?v=UHfMIJsdssM

Latest Journal Update

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Wanted to share this news report that was done by Richmond's NBC12 on Nathan's MRI scan from January that they aired last night.  We have had lots of people contacting us with questions.  The news wanted to get an update on Nathan's condition to share with the public.  It was so wonderful that they were there the day we actually got some pretty amazing news.  With all the treatments Nathan has been on over the years we have never seen a huge change for the better on any of the tumors (brain or spine).  During the January scan however Dr G could not even find the main spinal lesion and the smaller lesion in the spine was unnoticeable as well.  The brain tumor is still there and stable (cancer there but not growing). The spine may or may not have anything within the edges of the cord but the huge bulging lesion is unable to be seen.  We know that God is the one that is using this drug to help Nathan and pray that He would allow this medicine to help all of the other cancer cells and tumors in his body.  The hospital did come back a few days later with a section in the cervical area of the spine that they noticed something but are unsure if it is another lesion. We are praying for just a shadow and no more.  So to make a long story short, Nathan still does have cancer but it is a miracle that any of the lesions are starting to go away because in 6 years this have never happened before so we are praying it will continue to all of the rest of the cancer. "Let us hold unswervingly to the hope we profess for He who promised is faithful" - Hebrews 10:23

http://www.nbc12.com/story/27977434/trial-cancer-drug-helps-virginia-boy

Also, please pray as all four children are sick with some sort of flu or bad virus.  Sarah has gone into bronchitis.  Matthew is doing better just a little congested.  Tabby still has really high fever and feels bad.  Nathan just started with fever and symptoms today so we are treating symptoms and monitoring closely at home but in touch with his Duke dr.  Please also pray for our many friends battling especially:  Cullen, Wesley, Cassidy, Ethan, Yan, Nathan T, Caroline, Stella, Ella, and so many more.
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Comments

4 Comments

vada lyons
By Miss Vada
Praising God for He is worthy! So thankful for these wonderful results. I'm praying for Tabitha, Matthew, Sarah and Nathan to be well. I'm also praying that you and Bobby stay well too. If you need anything I'm here. Our love and prayers to all of you.
Rick Rasberry
By Rick Rasberry
God is so good! Nathan and Tabby are in our prayers daily.
Peggy Browning
By Peggy Browning
continuing to pray for everyone.....and for God's light to shine.
Carol McDonald
By Carol McDonald
What a story! I continue to pray that God will totally heal Nathan's little body. I know I say it all the time but you all are one AMAZING family and your faith is such an inspiration.