Hello Family, We are doing very well. Nathaniel is enjoying his freedom. I should say that we are ALL enjoying his freedom. Nathaniel's appointment on Tuesday went good. Mary our nurse practitioner is concerned about Nathaniel's weight and I respect her observations very much. We are hoping his weight just went down because of not getting the hydration 24 hours a day. That IV hydration added 250 calories on its own. With the backpack being gone he has been even more active burning up lots of energy. It is NOT an appetite issue because he eats like crazy and we are so thankful for that. I remember just trying to get him to take one bite in the past and how very stressful that was for everyone. I would much rather have it this way. We also wanted to share with you that our dear friend Isaiah VanBeek is now with Jesus. We got to see his beautiful parents and family on Friday. On April 29, Isaiah was in his mother's arms as they rested together and Isaiah peacefully passed. Isaiah was such a little honey and will be missed by so many. Isaiah's journey through his sickness brought many to faith I have no doubt. His journey definitely has strengthend our faith. We love you VanBeeks! You will always be in our prayers. God's blessings to you all...and thanks for all your love and support! TEAM LEUBKE
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