Nathan's Walk/Run for the MPS Society will be Sept. 26th. Will update more information later.

My Story

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I am 13 years old and I have a rare genetic disorder called MPSII or Hunter syndrome.

Journal

Friday, July 3, 2009 10:01 AM, CDT


Happy 4th!!  Thought you might enjoy seeing this HAPPY picture of Nathan a few years ago on the 4th!!  He loved going to the parade and going to mamaw's for a cookout.

Guess we'll be at home for the 4th this year.  All the people and sounds of the parade really upsets him. 

Nathan has had a rough week.  Don't really know why, but we all have rough weeks sometime.

Hope everyone has a safe and happy weekend!

Guestbook

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Love,

The Bivens Family

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E-MAIL AUTHOR

krbivens@bellsouth.net

HOSPITAL INFORMATION

UNC Children's Hospital
NC