Sleeping your own bed is over-rated. I tried, but it only lasted an hour until I was up and tending to Sandlyn...so to the couch I went. At least there was some sleep to be had. A couple of pieces of news. First, I was able to get in touch with Linda and got a verbal pathology report. She was on the run, so no written copy until our appt. next week. She says, it came back recurrent non-ossifying fibromas. It is great news that it did not come back saying MPNST. Since the last verbal pathology report I rec'd from this office was sketchy/even wrong...I hesitate to jump up and down too high. Don't get me wrong....we ARE happy for this news....We just are hoping and praying it is the whole truth. Dr. Killian was not interested in having it tested against the MPNST when we talked to him about it....so, only the written pathology report will tell whether it was tested or not and also everything that was found through their testing. Non-ossifying fibromas is obviously what we had hoped and prayed for. Nobody can explain why they have been so aggressive in her. Second, Barry went to the doctor today. He has been coughing for weeks. He has an underlying condition called sarcoidosis that tends to flare up every few years. Most of the time it is almost non-existent in his life. Seasonally, this is a bad time of year for him...in combination with some recent stressors...bang...flare-up. He could not get in to see his regular pulmonary doctor, so he saw the nurse practitioner today... She believes that this may have to do with his blood pressure medicine and has changed that, as well as inhalers and steriods. I hope this works and he can get some relief soon. It has been 3 years since he has had any problems like this....so after he gets it settled down, he should be fine again. I suspect that I will not try to update again for several days. Caring for Sandlyn right now is a 24 hour a day job...thankfully she is a plesant patient. She is feeling better and should continue to do that. Until we go back to see Dr. Killian next week, she is completely no weight-bearing on her legs. She is not allowed to touch her toes to the floor. When she is moved from the bed, she has to be moved in a sitting position...her legs can't dangle down. It is quite a challenge to move her..so she stays put most of the time in her bed. For now, that is all she wants to do...it hurts too much to even slightly move her legs. At least over the past couple of days, the swelling in her feet has gone down considerably. They look normal again. At next Wednesday's appt., Dr. Killian said he would x-ray her legs and decide then when she could start putting weight on them. Thank you for all of your help and prayers! Rejoice with us for the news that we have received and pray that Sandlyn will once again enjoy a full and successful recovery. Until next time...be a blessing to others....Sarah
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