My Story

Nathan was diagnosed with Acute Myelogenous Leukemia on August 28, 2005.

On July 28th, 2006 Nathan passed away after a long and courageous battle. He had always wanted to be famous, and through this journey he did so much. I could of never imagined that one little boy could of touched so many lives.

Check out link #1 for pictures of Nathan.

Journal

Sunday, July 5, 2009 9:15 PM, CDT


Most of the day yesterday Marissa was BORED!!  We are boring, sitting is boring, Dr's made her life boring...can't I do something.  We had some visitors, Grandpa Bob and Carolyn at lunchtime and that helped break-up the day a little.  Carl and Rita brought the boat by on their way to the lake, Marissa went out to see the new boat seats.   Last night we managed to take in the local fireworks, Marissa was happy to get out of the house and see the world.  Keeping her pinned down for 2 weeks is going to be difficult.  She is not in pain, she feels good and only needs pain meds to start the day; she is very stiff when she wakes up.

Today she had many visitors.  Her neighborhood friend was over and they played all day with polly pockets, littlest pets and webkinz.  She is eating well and is back to her sassy, literal middle school self.  Barie and Brock visited and gave her something else to focus on.  Brock LOVES Marissa.  Granny and pa stopped by along with Aunt T, Charlie and Maylee.

Thank you Aunt T for being a professional and helping me get her bandages off.  She still thinks that doctors are mean, but seems happy to have all the tape off.  This was "the worst pain ever" she wants to invent tape in which you can turn the sticky on and off.  A new Webkinz didn't even make it all better.

Above is a photo of Marissa's  x-ray, you can clearly see her staples that will now hold her spine stable.  Stability of the curve is a successful outcome to this procedure, but of course we are all hoping for a gradual decrease of her curve as she grows.

If you click on the photo's tab you will be able to actually see the staples.
 


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