My name is Morgan Wildman. Thanks for visiting my site.
I have an Ependymoma Stage IV malignant brain tumor. I first had it when I was eight years old. It was really big (baseball size).
After two years, it came back.
It has been a long journey, please read the rest of my story and in my words. Have a blessed day and thank the Lord for your life, all of it! Morgan
I was having headaches everyday, and sleeping a lot. My Mom knew something was wrong, but she didn't know what. After our first family vacation together, we went to have my eyes checked and the Dr. found pressure on my eye vessels. I had an MRI that same day, they found I had a baseball size brain tumor. I was 8 years old.
I have to say I was scared, but this Bible verse helped me. What time I am afraid, I will trust in Thee. Psalm 56:3 On March 5, 2009, I had a 10 hour surgery, and through it all God guided my surgeon, Dr. Donahue's hand. He did his best to remove all of it.
I donated my long hair to Locks of Love so that they could make a wig for someone who would lose all of their hair.
I also had to have radiation treatments to see if it would help keep the cancer away. The mask that had my head bolted down was itchy and very tight, I could barely see or talk out of it. So we did that everyday for 31 treatments. It was a relief when we stopped the radiation. A few months later, a scab that hadn't gone away became infected, so we had surgery. It turned out to be a brain granuloma.
An MRI in April 2011, showed the cancer was back. So in June, the doctors gave me Sunitniab, 9-15 pills a day. This was to see if it could effect a new tumor growing. That was over 450 pills total. Another verse that encouraged me was "I can do all things through Christ which strengtheneth me." Philippians 4:13. We had surgery on July 14th, 2011. Once again through it all, God was with me. But some thing different happened on this surgery, the right side of my face went completely numb. It got better day by day, but my face is still numb to this day. It's okay because it definitely is not as bad, because of the healing hand of God.
We had an MRI in March 2012. It wasn't what we wanted to hear. It was back. We had surgery again in April, but I wasn't as afraid because I knew Psalms 56:3-4. That same year, in July, I had my next MRI. It showed 3 months from surgery, the cancer was back again. So we had these options 1. Have surgery 2. Radiation 3. Do nothing 4. Do a drug trial. I chose do a drug trial since if the drug shrunk it, I could have surgery. If it shrunk it completely, Yippee, if it didn't do anything, have surgery. So I had to take one chemo pill a day for 2 months. After a lot of side affects that weren't fun. Finally, I was off the drug. A little of my hair also changed colors at the top to a whitish color. Time for my next MRI. Normally, I listen to music, but this time I watched a movie. It was so cool. Anyway, even though I wanted the tumor to be gone, no matter if the tumor shrunk, did nothing, grown, or was gone...I would Praise God.
We went outside to the gardens in front of the hospital. Mom and Dad broke the news, the cancer was growing and getting angrier. It was big much bigger than it was when I started the drug trial. In the middle of it, it was feeding and expanding on my blood vessels. When they told me, all I could do was sit there, take it in, and say it's Your Will LORD, not mine." And we know that all things work together for good to them that love God, to them who are called according to his purpose." Romans 8:28. When we went to see Dr. Donahue, he said that if we had surgery it might cause my left eye to go blind or it could paralyze the left side of my body. There was nothing they could do, so we decided to spend each day like it's the last.
After Christmas, my tummy and head started hurting so bad. Was it the pressure in my head or what. I was getting constipated a lot and became bedridden for almost 2 weeks. On January 6th 2013, I went to Cook's to see if the experts could help. Never say NEVER to your fears, because they can always come true. I know this from experience. I had a NGTube inserted down my throat and Go Lightly therapy. Go Lightly is a joke that nobody laughs at because it does not make you Go Lightly. I really didn't know if it would make me feel better, i was so weak, so I said Romans 8:28 over and over. After, what felt like a very long time, we got to go home. Boy, was I glad to be home.
The Lord has been so good to me as I am fighting this cancer. I am now 12 years old. Please read my journal entries and write back to me. I love to read all your notes! God Bless you. Love, Morgan