Morgan was 6 when we found out that cancer was growing in here brain. She was treated for a medulloblastoma (brian cancer).
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Here are the latest updates in a quicker form. I know we have many people that have joined our journey in the middle and maybe closer to the end of treatment so I thought that I would make it easier to follow along.
April 22nd we found out Morgan had a brain tumor via a CT scan done at the ER in Fargo.
April 23rd we left for Minneapolis MN to the Children’s Hospital and got ready for Morgan to have brain surgery.
April 24th she had the tumor removed and she did wonderful through the surgery.Surgery started at 12:30pm and she was closed up by 3:38 PM.She had her surgery done under an operative MRI so they were able to view the surgery sight before they closed her up to know that the entire tumor was gone.They had the breathing tube out by 5 pm. We were alos very happy and lucky that she had NO side effects from surgery. Short term blurred vision that was corrected with in a week.
On April 25th we found out that the tumor was cancer but they did not know what the true diagnoses was yet and would be sent on for further testing.
April 27th we moved out of the PICU and up to the 8th floor at Children’s hospital.
We returned home on Friday May 2nd.We had a nice surprise waiting for us when we got there as the fireman had a parade of trucks waiting for us when we got home.We also came home to a completely finished home when we opened the doors.We were in the middle of a remodel when Morgan got sick
On May 8th we received the call of the diagnosis and we were informed that it is the anaplastic medulloblastoma.However that was good news since the other option was a rare brain cancer and they would not even give us the name until they knew if she had it since they did not want to scare us anymore than we already were.
On May 12th she went to Meritcare to have the stitches removed from her head and also to have a complete spinal MRI done and her spinal tap she also had her hickman lines placed at this time as well.All of the tests came back clear and that they could not find any spread of the cancer.
On the 15th of May Morgan started her chemotherapy.We did Cisplatin, Vincritine and cytoxan She did for aprox 6 weeks
On June 23rd she started her radiation treatments along with an oral pill of chemotherapy called Temodar.She did 20 treatments of radiation to the entire spine and head and then another 11 to just the tumor spot.We completed radiation on August 6th.
The last leg of her journey started on Sept 5th as we started High Dose chemo in Minneapolis with a stem cell rescue after the chemo.We will do three cycles of this with her last treatment on October 20th.
11-13-08 MRI of Spine, brain and Lumbar Poke.
11-14-08 NED!!!!!! My baby shows no signs of cancer PRAISE BE TO GOD!!!!!!
12-11-08 Removed G/J tube (feeding tube) and also removed her HICKMAN lines.
February 2009 is the next set MRI God willing NOTHING will change before then.
Feb 10th 2009.. MRI of Brain only and she is NED
April 14th RELAPSE.... Our worse fears confirmed.... her body has gone through to much.
June 13th Morgan turned 8
June 22nd 2009 10:05am 14 months to the day we found out that she has cancer. Our sweet girl became and Angel and was called to be home with God.
We miss Morgan so much as nobody is quite like her. I wait till the day I will be with her again.