Molly has been a little sick the past few days and really kept me on my toes. Just a little extra congestion keeps us suctioning constantly. She also has been on oxygen for longer than usual. I'm sure she will be back to herself real soon.

I know I don't write much lately. It seems I am always at a loss for words. Really not much has changed for Molly. She is simply a gorgeous 5 year old with tay-sachs, still fighting for her life.

It amazes me how far she has come and how incredibly strong she is. One little girl who is usually seen as having no quality of life, has touched everyone who has ever met her. A co-worker told me today with tears in her eyes, she had seen Molly with Mark in the parking lot of my work and she wanted to tell me how precious she was. I know how precious she is, noone has to tell me that. I have learned the value of every breath she takes.

That is my update for the month. I have to go now so I can hold Molly and feel her take those vaulable breaths.