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Hello, This is to keep you informed about what is going on with Maddie and her treatment. We appreciate your prayers for Maddie and hope this is helpful to keep you informed on Maddie's treatment. Please sign the guest book when you visit. We would like to have something to show Maddie how many people loved her and what she went through. Thanks again for all the prayers.

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Saturday, August 28, 2010 11:47 PM, CDT


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Hey everyone! Just wanted to answer a quick question someone had. Maddie's phoresis is still every other week right now and it will be discussed at the end of September whether she will go to once a month at that time. It pretty much depends on how she does when we change her dose of steroids at the beginning of September. If her gvhd problems stay the same with the decrease in steroids we should be able to go to once a month. If she continues to have flare ups not for awhile. Thanks for asking though. I don't know if I answered it or not before. :) until she is done with phoresis though we still have to be extremely cautious with visitors and taking her places because the gist of phoresis (short version) is that they are making her white blood cells non-functional so her immune system is still depressed and then on top of that her steroids hinder her immune response as well as her transplant anti- rejection drug. Hope this helps Katy and thanks for all your wonderful comments. Don't worry I would be a wreck if I had to take mad's to school. :)

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