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My Story

This web page was created for Michelle Merrill and her family and friends. It will be to keep everyone updated on her condition and important messages. Thank you for visiting!

Michelle first became ill on December 6, 2011. She was admitted to Sparks Regional Medical Center on December 9. After one week and no definitive diagnosis, Michelle was transferred to the Mayo clinic in Rochester, Minnesota. The diagnosis was finally discovered there. Michelle has hemophagocytic syndrome, also known as hemophagocytic lymphohistiocytosis (HLH) This can be caused by several things. In adults, it is most often caused by either an infection of some sort, or it is idiopathic, meaning that there is no known cause. In Michelle's case, the current thinking is that we have not found a cause, making hers an idiopathic case. Treatment for Michelle will consist of a special type of chemotherapy for eight weeks.

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Michelle Merrill posted a new journal entry, "Two years ago".

Two years ago today I was admitted to Sparks. Today I am HLH free! Thank you to everyone who never stopped believing in me! Read more

Karen Brightwell signed Michelle's Guestbook.

So happy to hear this. Prayer is so powerful, and God is good. Have a wonderful summer. Love and prayers. Karen Brightwell Read more

Ron Snyder signed Michelle's Guestbook.

Michelle, you have no idea (but maybe you do) on how many friends you have and the ones who monitor your progress. We ALL are so happy with the progress and wish you ... Read more

Michelle Merrill posted a new journal entry, "May 20, 2013".

Yesterday was my last day on all of my meds! Mayo and Dr. Armstrong will continue to monitor my bloodwork routinely. Glad to put that year and a half behind me! Read more

Michelle Merrill posted a new journal entry, "May 20, 2013".

Yesterday was my last day on all of my meds! Mayo and Dr. Armstrong will continue to monitor my bloodwork routinely. Glad to put that year and a half behind me! Read more

Michelle Merrill posted a new journal entry, "April 28, 2013".

Just completed my first half marathon in honor of all those affected by the OKC and Boston bombings, as well as Crohns Disease and Histiocytosis. A little over a year ago ... Read more

Michelle Merrill posted a new journal entry, "Not Fooling!".

Reduced my cyclosporine for the last time today! After six weeks I should be medicine free! Read more

Michelle Merrill posted a new journal entry, "March 1, 2013".

Ferritin level is still decreasing!  Down to 224!  And I am down to only 50 mg a day of cyclosporine as opposed to about 600 mg a day when I started!  In five more ... Read more

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