My Story

Hello to my family and friends. There is so much going on in my life that I want to share with you. Unfortunately, things are happening so fast that I cannot keep up with whom I've told what! I end up repeating myself to some and leaving others out of the loop altogether! This site should help ameliorate some of that. Thanks for visiting; your support is priceless.

It is difficult to say exactly when this saga began. Most of you know that about six years ago I simply began to feel run down and generally weak with very few specific symptoms. The simplest activities left me totally exhausted.

After literally years of numerous doctor visits with a multitude of different physicians, I developed a GI bleed and was subsequently diagnosed with Crohn’s disease. The assumption was that this malady was the crux of the problems I had experienced. Unfortunately, the treatment for the Crohn’s was ultimately more damaging than the disease itself and resulted in autoimmune hepatitis as well as excruciating arthralgia related to autoimmunity.  Add to this the already painful but well treated degenerative arthritis and type two diabetes and you get a woman who was fast becoming old before her time.

Nonetheless, I persevered and during the latter part of last year began to feel better than I have felt in years.  My Crohn’s disease and hepatitis appeared to be in complete remission (amazing the effects of Prednisone and Bud light), the bullous disorder that developed in September appeared to resolve on its own and my diabetes was well controlled.  The only issues that remained but did not have a negative impact on my steadily increasing, incredible energy level were a nagging pain in my right shoulder that radiated down my arm and over to my neck, and some other aches and pains in my hands and knees.  Physical examination of my shoulder indicated a likely rotator cuff issue and I had several weeks of physical therapy.  Alas, the pain in my shoulder persisted and, indeed, accelerated.  So we got an x-ray …

I suppose my CA Saga began with that x-ray. The orthopaedist (Deanna Constable, MD) saw nothing obvious to indicate rotator cuff issues but did notice what appeared to be a weak spot in the end of the humerus closest to my shoulder.  She ordered an MRI which showed an obvious lesion in the bone.

Dr. Constable contacted my primary care physician (William K. Robinson, MD) and the trek began.   Nine quarts of blood, a gallon of urine, a full body bone scan and an excruciating bone biopsy resulted in good news and bad: The good news was that the lesion in my arm appeared to be the only site in my body; the biopsy, however, revealed Metastatic carcinoma of unknown origin.  I was absolutely stunned!

Since receiving this news on May 29th I have been poked and prodded and turned in every way but inside-out. I completed radiation treatments to my shoulder the 28th of July and began working on August 3rd. A repeat PET/CT on September 18th revealed continued cellular activity in my humerus as well as new activity in the back side of my pelvis.  Another bone biopsy on the 25th showed the same as before: metastatic cancer of unknown origin.  Sigh ...

In spite of all the poking and prodding and multitude of tests and examinations, there is still no clue as to what or where the primary cancer is.  I am passed stunned now. I vacillate between total fear and anger and I struggle between resignation and a very strong urge to lash out.  And the metastatic cells go marching on.

I've always prided myself in being a little different, a one of a kind sort of gal who enjoyed being a maverick. Not anymore. Without my awesome husband, dear sisters and brothers and some wonderful friends (Cathy, Mike, you too Bill), I do not know where I'd be. All of you, your love, support and prayers mean so much to me.

Yet the saga goes on.


Russ Jones signed Ellen's Guestbook.

Ellen, I was thinking of you yesterday and prayed that you would post something soon. My fear was that you couldn't so I was happy to read your latest. I hope that the ... Read more

Roz Catoe signed Ellen's Guestbook.

Ellen,    Family is truly a gift and they truly know us.   They can tell when we are happy, sad and when we hurt.   Your family truly loves you and is always there ... Read more

Ellen Fuseler posted a new journal entry.

This is a "special" message to my dear sister Marilyn and her wonderful son Ian.  I do not know what or how I could do without you and I want you to know how ... Read more

Ellen Fuseler posted a new journal entry.

Ellen came home from the hospital yesterday (Tuesday, 6/22).  She is still being treated for spinal cord compression with steroids and radiation.  In addition, an MRI ... Read more

Ellen Fuseler posted a new journal entry.

Ellen was admitted last night to Lexington Medical Center with spinal cord compression.  One of the tumors (the one they’re aiming at with the radiation therapy) is ... Read more

Ellen Fuseler posted a new journal entry.

Oh what a beautiful morning; oh what a beautiful day!  Folks, I had the best night's rest last night than any I've had in weeks!  I'm not sure if it was from residual ... Read more

Ellen Fuseler posted a new journal entry.

Psalm 70 (NIV) says, "Hasten, O God, to save me; O LORD, come quickly to help me."  Tonight the pain is very close to more than I can bear.  I have taken the ... Read more

Ellen Fuseler posted a new journal entry.

Good Morning All,The visit with Dr. Jones yesterday went pretty much as I expected it would.  I came away with an additional prescription for pain medication and two ... Read more

Ellen Fuseler posted a new journal entry.

Maybe, just maybe when I was pregnant all those years ago I may have looked more forward to going to the doctor than I do today.  Seriously, I am so in hopes that I can ... Read more

Ellen Fuseler posted a new journal entry.

Forgive me please for taking so long to let you know the outcome of last week's visit with Dr. Drabkin in Charleston.  I'm still a little aghast at what we heard but I ... Read more

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