Melaina Cunningham
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Hi! My name is Melaina Grace Cunningham. At only a few months old, I was diagnosed with a rare muscle disease called Nemaline Rod Myopathy. This came as a big shock to my family, but I have learned to adjust beautifully. (Read more about NM in my full story). Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

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  MONDAY, MAY 12, 2008 12:48 AM, CDT
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A belated Happy Mother's Day to all the moms out there! Mine was very nice. God blessed me with such a special gift--I am so very proud to be Melaina's mommy!

We had a great visit with Gram and Grandpa Joe this weekend! We went to breakfast this morning at Cracker Barrel (along with about 10,000 other folks!)and Melaina was in rare form. Not much was making her happy and she was the "sassiest" she's ever been! Maybe it was the change in weather, but whatever it was, I hope it was an isolated incident (ha--wishful thinking, hugh?!) When we got home, we were all wiped out and took giant naps!

Yesterday, I took Melaina to her little friend, Landon's, 3rd birthday party. The weather was perfect and Melaina enjoyed going down the curly slide at the park and eating Cheetos.

This Tuesday, I am taking Melaina to have another swallow study done. We will do this one locally, so hopefully we will get good results since we were able to choose a time that would suit Melaina's schedule a lot better. Please pray that things go smoothly and safely and we get some good information. These things always make me nervous, but we'll no doubt have the suction machine ready to go should there be any problems!

One last thing before I sign off for the night. In my last entry I asked for some prayers for our little friend Audrey. Her condition continues to decline, but she is still hanging in there. They are giving her morphine for any pain and she is resting comfortably. It will probably not be too long before she earns her angel wings. I went to visit her and the family this evening and they are doing okay, but could definitely use many prayers to help them through this difficult time. It does not seem right or fair for a child to pass before the parents, but sometimes we do not understand God's plan. This little girl has been so strong for many years and has been an inspiration to us. We got to know this family when we were staying in the Ronald McDonald House during Melaina's first hospitalization. They brought the other families Christmas dinner (that is their tradition) and we got to visiting and realized they lived near us. Since then, we have become good friends and share a special and unique bond because of our children. My heart is numb right now and I can only imagine what they must be feeling. Hug and kiss your loved ones and thank God for them.

Check back soon for new, updated pictures. I'm off to bed for now. Thanks for checking in!!!!

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EMAIL AUTHOR
cunninghammail@yahoo.com

HOSPITAL INFORMATION
St. Louis Children's Hospital
One Children's Place
St. Louis, MO 63110
United States
314.454.6000
 
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