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Mi historia

Thank you for following our daughter Kate's journey. We ask for your prayers during this incredibly difficult time.

Monday June 29th, 2009 was supposed to be a day filled with summer fun. The kids and I were going to the water park to celebrate summer. However, I noticed that a slight tremor in her right hand that had developed over the past few days had notably worsened. We decided to take her to her Pediatrician, just for safe measure. A CT of Kate's head was ordered. We proceeded to Phoenix Childrens Hospital for a stat CT of her head. That evening I, Kate's mom, was taken into a room alone and told Kate had a large tumor on the left temporal lobe of her brain. The world seemed to stopped for us that day, but our long journey had just began. Kate was directly admitted to the PICU. One minute thoughts of the water park the next our child is critically ill in the intensive care unit awaiting emergent brain surgery within a matter of days.  We would have never chosen to be a part of this journey with childhood cancer, but it was chosen for us, and our sweet Kate. She is now in the Phoneix Children's Hospital undergoing treatment for this disease.

Kate underwent a craniotomy with tumor resection on July 3rd, 2009. They unfortunately were only able to remove 50% of the tumor due to it's location in the left temporal lobe of her brain and the fact that the tumor had wrapped itself around the left middle cerebral artery to her brain. Kate experienced right sided paralysis immediately following surgery along with the loss of her speech. She has since regained much of this, however her right sided weakness still continues. 

After a few days of intense waiting the pathology report was in, Kate was diagnosed with a very malignant, aggressive brain tumor called a supratentorial primitive neuroectodermal tumor or sPNET. Our hearts felt broken. Long term prognosis and outcomes weren't encouraging so Kate has been put on a study that is showing a little more promising outcomes, hopefully a better chance at survival and less long term side effects. She is currently undergoing the Head Start 3 Study out of Los Angeles but doing it at Phoenix Children's Hospital. The study involves the initial brain surgery, 5 round of very intense chemotherapy with possibility of a subsequent brain surgery and then another round of chemo with a stem cell transplant. We are hoping to avoid radiation after transplant. Kate is also in physical therapy and occupational therapy and has been released from speech therapy.

We believe strongly in the power of prayer and the ability of Jesus to heal our precious daughter. We are asking others to join us on this journey and fervently pray for our Kate. The road is long and unbelievably hard. We have 3 children, all who are intensely affected. Olivia is now 7, Kate is 5 and Will is 4. Please keep all of us in your prayers as we try to walk this journey of childhood cancer. Thank you. 

As of September 29th Kate was readmitted to begin her 3rd round of chemo. She will be hospitalized for the entire round.

January of 2010 Kate finished her 5th round of chemotherapy. Her subsequent MRI showed there was still residual cancer remaining. She was then admitted on February 8th for her "consolidation" phase of chemotherapy with an autologous stem cell transplant. This equated to 1 years worth of chemotherapy in 6 days.

Due to the residual cancer prior to transplant Kate then needed to undergo brain radiation. We temporarily moved to Houton, Texas for 2 months so Kate could undergo 31 treatments of proton beam radiation to the tumor bed.

Kate finished radiation on May 24th, 2010 which finished her treatment for the Head Start 3 Study. June 29th, exactly one year from her diagnosis, Kate had her first MRI post treatment which was inconclusive. She followed it with a PET scan one month later which showed no definitive signs of cancer! 13 months of prayers. And one scan showing no cancer!

Kate had another scan early September 2010 which again left us guessing. There was a new spot that appeared on the MRI. We are currently waiting for another MRI to see if this is merely treatment changes, vascular changes etc, or the return of cancer.

On February 1st, 2011 a routine MRI discovered that the brain cancer had indeed returned and metastasized. Options for treatment were few. And the prognosis was awful at best. Few ever survive its return. And yet.... we continue to pray for healing. 

Please continue to pray as we journey alongside our daughter.

Fuente

Holly McRae posted a new journal entry.

It's difficult to know what to update.... there is much going on that isn't necessarily translatable to paper. Or the internet. Kate is recovering well from the brain ... Lea más

Carolyn in VA signed Kate's Guestbook.

Much love and deep prayers, believing they are heard, and the ability of heal is possible with God - all things are possible.  Carolyn Lea más

karen clarida signed Kate's Guestbook.

Been here from the start and not going to quit now! Sending many prayers your way for Kate and all of your family. It is so hard to understand why you all are having to go ... Lea más

Margie signed Kate's Guestbook.

Hi - you don't know me but I have been praying for your daughter daily along with a young girl from our church who also has a brain tumor - they are incorporating a diet ... Lea más

Jill Sievers signed Kate's Guestbook.

 In God's Grip !  Thanks for the update - as hard as it is to read, it is  - -  always held up !  Jill/Maplewood,Mn Lea más

Tina Remender signed Kate's Guestbook.

I am praying. My family is praying. God is mighty and I believe his power will continue to shine through your journey. Hold tight to His hand!!! Praying...... Lea más

Margaret Vela signed Kate's Guestbook.

Holly, Your entire family is in my prayers especially Kate.  I pray she is healing quickly.  I pray that whatever treatment is chosen will be a successful one.  I pray ... Lea más

Kevin Keenon signed Kate's Guestbook.

I am continuing to pray and so is my 11 yr old Graddaughter. I praise God that you are doing so well Kate. Lea más

Pam Smith signed Kate's Guestbook.

Praying for you and your precious Kate. She gave me courage as an adult facing a cancer diagnosis 3 years ago. If she as a young child could do everything asked of her, ... Lea más

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