Diario de Kate McRae
Escrito el Feb 12, 2014 2:47pmI find it's harder to update as the days pass, a blessing as the urgency of things of the past few years has settled down into a different sort of routine. I like that. But it's also harder as Kate ages. Feeling a distinct motherly duty to protect what should remain private and yet still share that which is free to, for those who have chosen to join her story. Sometimes the line feels blurry so I sit quiet.
Many things small, yet huge have passed. Celebrations and disappointments. Realities wrestling with hope and progress. First Kate's MRI final report did come back clean. I will never tire of hearing those words. The years, the waiting and the treatments have aged us and yet those words serve to refresh. Kate was labeled as having a new allergy after the last MRI. She will now have to go on a regimine of being pre treated before and after any and all MRIs, in attempts to try and prevent the allergic reaction. We are obviously not in the place where we can just forego MRI's. Disappointing but nothing crucial. Her next MRI is already sneaking up just 4 weeks away.
It feels late and ineffective to merely just thank publicly those of you who contributed to the Christmas drive. But thanks I guess is all I have. You blessed us and the 30 families affected. You supplied thousands and thousands of dollars in gift cards to send out. We wept and rejoiced reading your letters and seeing your generosity. And for the first year I noted that a large portion of the donations actually came from those of you who whose journies have been hard, and many whose still are. It spoke volumes. Again thank you... It's a great joy to join with you in reaching out to these families.
So we continue to tackle the challenges faced with a neurological injury. Progress feels painfully slow if non existent and yet her Rehab Dr was very pleased with were we sit. Kate continues to be driven by her competitiveness. If told she can't do something at school she returns home determined to prove that kid otherwise. We hope one day to find the potential physical limitations as one of her greatest strengths. And rather than seeing cancer as a limiting factor hoping it will somehow provide boundless opportunity for her. It's one of my countless prayers for her life. So in the waiting for the answer I am ever so slowly learning to watch for His activity in the process.
Next month will be filled with 3 rather important specialist appointments. We cherish your prayers. But we just as much cherish your celebrations with us. I realized I missed the 3 year mark for Kate's relapse. Since it seems many of the events of the last years have revolved around those specific dates, I couldn't believe that I didn't recognize when February 1st hit. And yet I smile realizing she was too busy living. This Monday does mark a celebration, Kate's transplant birthday. 4 years ago she will have received her own stem cells back in attempts to give her a new chance at life. I hope I never forget to celebrate.
Thanks for loving her and praying for her, and us in turn.
Escrito el Dec 17, 2013 6:13pmMuch to update with less than stellar focus right now...
Most importantly... Kate had her MRI yesterday. I thought we had that down. After seemingly hundreds, yesterday proved that even the routine can be not very. She was a champ as usual despite a nasty cough. She laid still for the entire scan holding her cough until they told her to. They were impressed, I was assured she would do no different. Then after the MRI she broke out into a rash. For as many times as I have said, "no she has no contrast allergy" (a medication given during the MRI) yesterday proved different. The rash turned into momentary wheezing and so on. Benedryl, longer stay for observation and then we left. But only to wake up this morning to the rash returning, and skipping school for the 7th Dr appointment in the last week. The rash has worsened despite Benedryl, which now will not allow her to have the contrast for the MRI's without first being treated on a regimine of steroids and a dose of Benedryl beforehand. Bummer. But the hard thing has been watching her struggle. She normally smiles incessantly, rarely complains and always find something praiseworthy in the hard. Lately she is just done. Done with cancer and all of its nasty after effects. She cries easily and feels left behind when she spends lots of time at the Dr. She has begun to wonder if life will always hold cancer's sting. Makes our hearts break to watch. Please pray for her spirits... they are taking a hard hit.
So as we were attempting to figure out the allergic reaction today we received the most welcome of emails from her oncologist... a clean scan! I have no detailed information until tomorrow at her oncology appointment... but for now we feel the burden of that lifted and we celebrate 1 and a half years off of cancer treatment! Thank you Jesus...
Thanks for praying and celebrating simultaneously with us. Seems there is always the need and place for both.
We will update after the final report tomorrow... however we may be headed in tonight for a chest xray... but it's with the ease of knowing no cancer is growing.
Escrito el Dec 4, 2013 2:42pmThank you to those who continue to send in gift cards... I know they will serve these families well this Christmas.
I wanted to update some more gift cards we are in need of, but first let me update you on some of the families. I'm not sharing any specific story today. But here is why, many families don't have the means and desire to publicly share what they are facing. And so this year I have worked a little more with a few social workers to bring their stories and needs to us in hopes of better reaching those hidden behind anonymity. I was told I could have as many as I could take, the need was tremendous. And under the part listed "greatest need" many simply wrote "for gas cards" or "groceries". And then I learned many of these children had incurable forms of brain cancer. One little one ended their cancer battle just this weekend. It feels so small, helping only through gift cards. But the alternative of doing nothing, well I will take small being at least something. So thank you... thank you for seeing the need and heartache with us. And for stepping into it. Sweet school classes, bereaved families, families currently fighting, girl scout troops and some using their holiday parties to ask for gift card donations have all been stepping in. Please know our thanks runs deep.
For those of you who can still step in to help, we so desire you do. As some now bury their babies, others fight through the terrible treatments, and others deal with the life long realities cancer has dealt we hope to say we care, and that you care. And know any notes you send for the families will be included in the packages.
Additional gift cards we continue to need
LOTS of gas gift cards. (we will allocate to the state the person lives in)
Vallarta gas cards
Burlington Coat Factory
Food for Less (at least 10 families requesting)
Toys R Us
Please mail to:
Kate's Crazy Christmas
PO Box 8457 Alta Loma, CA 91701
Additional info is posted at www.prayforkate.com under Christmas drive.