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Kate’s Story

Thank you for following our daughter Kate's journey. We ask for your prayers during this incredibly difficult time.

Monday June 29th, 2009 was supposed to be a day filled with summer fun. The kids and I were going to the water park to celebrate summer. However, I noticed that a slight tremor in her right hand that had developed over the past few days had notably worsened. We decided to take her to her Pediatrician, just for safe measure. A CT of Kate's head was ordered. We proceeded to Phoenix Childrens Hospital for a stat CT of her head. That evening I, Kate's mom, was taken into a room alone and told Kate had a large tumor on the left temporal lobe of her brain. The world seemed to stopped for us that day, but our long journey had just began. Kate was directly admitted to the PICU. One minute thoughts of the water park the next our child is critically ill in the intensive care unit awaiting emergent brain surgery within a matter of days.  We would have never chosen to be a part of this journey with childhood cancer, but it was chosen for us, and our sweet Kate. She is now in the Phoneix Children's Hospital undergoing treatment for this disease.

Kate underwent a craniotomy with tumor resection on July 3rd, 2009. They unfortunately were only able to remove 50% of the tumor due to it's location in the left temporal lobe of her brain and the fact that the tumor had wrapped itself around the left middle cerebral artery to her brain. Kate experienced right sided paralysis immediately following surgery along with the loss of her speech. She has since regained much of this, however her right sided weakness still continues. 

After a few days of intense waiting the pathology report was in, Kate was diagnosed with a very malignant, aggressive brain tumor called a supratentorial primitive neuroectodermal tumor or sPNET. Our hearts felt broken. Long term prognosis and outcomes weren't encouraging so Kate has been put on a study that is showing a little more promising outcomes, hopefully a better chance at survival and less long term side effects. She is currently undergoing the Head Start 3 Study out of Los Angeles but doing it at Phoenix Children's Hospital. The study involves the initial brain surgery, 5 round of very intense chemotherapy with possibility of a subsequent brain surgery and then another round of chemo with a stem cell transplant. We are hoping to avoid radiation after transplant. Kate is also in physical therapy and occupational therapy and has been released from speech therapy.

We believe strongly in the power of prayer and the ability of Jesus to heal our precious daughter. We are asking others to join us on this journey and fervently pray for our Kate. The road is long and unbelievably hard. We have 3 children, all who are intensely affected. Olivia is now 7, Kate is 5 and Will is 4. Please keep all of us in your prayers as we try to walk this journey of childhood cancer. Thank you. 

As of September 29th Kate was readmitted to begin her 3rd round of chemo. She will be hospitalized for the entire round.

January of 2010 Kate finished her 5th round of chemotherapy. Her subsequent MRI showed there was still residual cancer remaining. She was then admitted on February 8th for her "consolidation" phase of chemotherapy with an autologous stem cell transplant. This equated to 1 years worth of chemotherapy in 6 days.

Due to the residual cancer prior to transplant Kate then needed to undergo brain radiation. We temporarily moved to Houton, Texas for 2 months so Kate could undergo 31 treatments of proton beam radiation to the tumor bed.

Kate finished radiation on May 24th, 2010 which finished her treatment for the Head Start 3 Study. June 29th, exactly one year from her diagnosis, Kate had her first MRI post treatment which was inconclusive. She followed it with a PET scan one month later which showed no definitive signs of cancer! 13 months of prayers. And one scan showing no cancer!

Kate had another scan early September 2010 which again left us guessing. There was a new spot that appeared on the MRI. We are currently waiting for another MRI to see if this is merely treatment changes, vascular changes etc, or the return of cancer.

On February 1st, 2011 a routine MRI discovered that the brain cancer had indeed returned and metastasized. Options for treatment were few. And the prognosis was awful at best. Few ever survive its return. And yet.... we continue to pray for healing. 

Please continue to pray as we journey alongside our daughter.

Latest Journal Update

chemo resumes

Kate has had 12 days off chemo, and tomorrow starts the chemo cycle over again, for round 2. For now, the plan is to attempt 4 cycles and get MRI's every 2 months, or every 2 cycles. We haven't even talked past that. Evidence of the diseases unpredictability. 

We are grateful Kate has improved over the past few weeks. Each day is still mostly negotiating between the bed and couch, however seizures have been minimal to absent. And she has made it for a few outings... the picture being her first time at her brothers soccer game tonight. We continue to struggle with medication side effects and so we are ever so slowly attempting to change the doses. One of those effects has been on her eyes. It is scary for her and most often she has to sleep it off. We did meet with the neuro- ophthamologist to assess everything going on with her vision. I have always enjoyed him. He has seemed to thoroughly enjoy seeing Kate and sharing in her great strides against this disease. The appointment was mixed, serving up heartache and surprise. We were grateful to learn any of the eye symptoms she is having have not caused any damage, and he does believe them to be related to her cocktail of medications right now, not from tumor or surgery. The surprise came when he said her eyes actually looked better than they did a year ago.. good news we relish. Then came the but... but we are in a really tight place. Tight meaning incredibly dangerous. And so revisited the heartache along with the reminder.

So tomorrow we start back... praying that every single part of the chemo will only wipe out every last cancer cell. And it will spare everything else. I am nervous as everything took a fast downward turn last time a few days after the start of chemo, and so we weren't even able to do the full cycle. Praying this time proves differently if these are the drugs to help Kate. Please pray the nausea and vomiting will be minimal, seizures will not occur, and her blood counts will hold steady. Thank you... seeing her know she is loved blesses us greatly. 

Lamentations 2:19
Rise during the night and cry out. Pour out your hearts like water to the Lord. Lift up your hands to him in prayer, pleading for your children
819 people hearted this



kk love
By kk love
We love you sweet Kate. You have every Prayer we own.
Hopefully this round will be easier for you honey.
Ask your mommy and daddy if I can send you a really neat comfy I found at the store. I think you'd like it very much as I know you love puppies! I love puppies too! We have 2. A boy and a girl. They are best friends and get along very well with the barn cats. We have all kinds of fun animals here.
It's a lot of work though,especially when it gets cold out like now.
Give Olivia and Will hugs from my family to yours.
Huge gentle hugs and special air kisses Kate.
Bless You Dear One.
Waynel Walker
By Waynel Walker
We are warmed that u post so beautifully, Holly. Thank u for letting us in.
Waynel Walker
By Waynel Walker
We are warmed that u post so beautifully, Holly. Thank u for letting us in.
sandie benninghoff
praying ...Praying and continue with love and hope...My brother just went into second remission...praying for good...very good results for sweet Kate.
1 person hearted this
Terri Harton
By Terri Harton
Praying for the cancer cells to be gone, gone, gone forever. Please Lord keep the side effects away from Kate and the seizures away. Lord wrap her in your arms and heal her body.
1 person hearted this
leona hensel
By leona hensel
Praying that the chemo will be better for this sweetheart this time with the least amount of side effects possible. No seizures, or anything else. Please jeep us posted on the progress of this little darlin'. When needed , read Isaiah 43:2, it'll help, believe me. Love and prayers always your Illinois prayer team.
1 person hearted this
Kathy Mikeal
By Kathy Mikeal
Lifting everyone up in prayer. Our God is greater - I proclaim in Jesus' name! Blessings to you and your precious family!
Sharyn Pohlman
I too have a daughter who has been very sick the last 5 years. Your journal entries are so very sad but are also written so beautifully. Sometimes the emotional pain of seeing our children suffer is beyond belief. You, Kate & your family are in my prayers. I feel so close to you Holly because we share this awful journey with our girls & with the Lord. Not understanding why but always trusting Jesus through the many tears. Someday our girls will be whole again; it's waiting for that day that is so difficult.
Richard Kucera
By Richard Kucera (and Marlene)
Most dearest Kate, this is my first time writing, but I've been keeping up with the Caring Bridge posts for some time now. My wife has read many posts to me that your wonderful mother has written about the days following treatments and surgeries . I've been try to get on the sight and read now for myself.
You are the bravest and sweetest girl to have to go through so much at a young age, but your faith in Jesus and the love of all your family and friends keeps you strong and pulling for the next day of sunshine to make your face and heart glow! My wife and I pray for the healing hands of Jesus to heal this dreaded thing that has attacked your body and hope that complete healing will take place!
You are very lucky to have such wonderful family and friends surrounding you every day. I went to school with Grandma Shirley, she's a wonderful prayer warrior for you, as well as Grandpa Brian.
I (and my wife Marlene) continue to pray for you and keep your mom , dad and your siblings in our prayers also! I am so totally grateful for the power of prayer and will continue to send it your way!
Blessings , Sweet Kate . God love you!
lisa bodenhausen
By lisa bodenhausen
continuing to lift EVERYONE up through this difficult, exhausting time.