My Story

Maya was born on January 28, 2007. At birth the doctors realized immediately Maya had some serious problems. She was diagnosed with VACTERL Association (aka VATER Syndrome). At 18 months she was also diagnosed with severe to profound bilateral hearing impairment.

Journal

Wednesday, June 10, 2009 10:34 PM, CDT


Maya is getting a cochlear implant!  MRI results were good enough to warrant a cochlear implant in her left ear.    It is not guarenteed that she will have optimum results, but there is a good chance she will have some degree of hearing.  She had relatively none with hearing aids.  We did have to switch ENT's.  The last ENT is very well respected and a great pediatric ENT and super cautious which is good.   He really encouraged us to take her to the University of Michigan for a prom stim test prior to attempting the cochlear implant.  We decided no matter what the results were in Michigan we would still want to try the cochlear implant as the other tests clearly show some function in her left ear.  We decided against MIchigan for several reasons-1) involves her having general anesthesia AGAIN, 2)expensive to travel 3) results wouldnt change our mind 4) Might effect insurance approving her implant if we get bad results.  5) it has been a year since her diagnosis with hearing loss and we've had no progress so time is of the essence.  So, time will tell if we made the right decision.  

On a fun note, we are in the process of buying a camper for this summer!  We are eager to get out of town as much as possible and this will be a great investment for the whole family.  The boys are super excited! 

Thank you everyone for keeping up with our little diva.  I will update pictures very soon! 


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Thank you for your words of hope and encouragement. One day Maya will be able to read these herself and know how many people cared for her.

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HOSPITAL INFORMATION

St. John's Mercy
MO
United States