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Total Entries: 320
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  • "Its time for an update."

    Written Apr 8, 2014 7:49pm

    My friend Debby sends me messages when its been too long since I've updated.  Things change so little now that it seems there just isn't much to report.  Days pass quickly when we think of the time that feels lost to this disease, but we remain grateful that Matthew is recovering so well, even if its slow.

    Matthew has begun working with a training coach recently.  She is remarkable.  The difference in his mindset with her, verses therapy, is huge.  We are trying to wire him to think of himself and an athlete rehabing from an injury now, instead of whatever else he's had in his head.  He's begun to stand more, to take more steps supported without a "machine" to help, but just leaning on Dad a bit.  Matthew tires easily but yearns to be out with his friends instead of stuck in our social circle, I can't blame him.  So many of his friends are ball players and athletes, they are busy with baseball; and sadly, after more than 14 months, some seem to have forgotten him.  We can't blame them at all, I'm not sure Matt would be any different if the roles were reversed.  Yet, he perciviers.  

    6 more weeks of school for him and then summer begins.  We'll be trying to finish up his online school work.  He'll enter Rancho in August as a junior finally, prayerfully on his feet.  Joe has come across a few exciting job opportunities and is in the process of trying to re-enter the work force.  We're excited about that, it will mean big changes for our family. Good changes for us.  Please continue to keep us in your prayers and let us know how we can pray for you as well.  We thank you for your continued support and love for us, we couldn't do this without so many of you helping us.
  • March 26, days keep coming

    Written Mar 26, 2014 9:25pm

    Last week was great!  Matthew, Tiffany, Joe and I were able to get away and visit spring training in Arizona for a few days.  We managed to squeeze in 5 baseball games in 5 different parks!  Surprise was probably our favorite, all the parks are great and people are friendly but at that one Matthew met Rolly Fingers and was gifted with a signed photo and baseball.  We stayed in a very reasonable motel but it had a lift for the pool and Matthew was able to get in recreationally for the first time since he's been sick.  When he began coming out of the coma he talked about swimming and getting our own pool again all the time.  It was wonderful to see him enjoy the water outside of "therapy" and he did give swimming a try.  He wasn't able to take off like the fish he had been but he did build a little confidence I think.

    Since we've been home I've been trying to give Joe a break and take care of being Matthew's personal assistant on my extra week of spring break.  Its reminded me what a completely incredible man I am married to.  Matthew is terrific and the bravest person I know, but getting him going, and motivating him in the mornings is a struggle.  

    The trauma Matthew suffered is still contributing to his CD (Conversion Disorder) and Kaiser still insists they know best about how to treat him (even though they didn't properly diagnose him).  That leaves Matthew in his wheel chair feeling like the world is passing him by.  On my weak days he encourages me and reminds me God isn't finished with him yet, but he will get there.  In his own weak moments I try to find words, we pray and share scripture but I fall so short so often.  We continue to pray for his complete restoration and are confident that in God's time we will see Matthew back on his feet and he'll be running the bases on his own.
  • Update time

    Written Mar 8, 2014 2:22pm

    Yesterday was exciting.  Matthew's school, I still love that place, had their Renaissance Rally. This is a big deal celebration for the students, nearly all of them had on shirts they earned for their good grades.  At the rally they selected about 5 categories for students and selected the "TopTen" in each.  Matthew was nominated for one of the "Most Inspirational."  We were invited to attend, what a great event.  The student selected as "The Most Inspirational" was a young lady who battled cancer and beat it.  Among the others included was a beautiful young woman who said she's followed Matthew's story, she has Cerebal Palsey and walks with the aid of canes.  
    This young woman and Matthew have become fast friends, they have experiences and beliefs that brought them together.  Matthew met her on Thursday and we've been praying for her ever since.  We've been very focused on "our" world for the past 14 months, its good that God reminds us that we are not the only people who face painful challenges.  Once again, Matt has humbled me as he's shared with his new friend.  He has his privacy but he shares much more with me now than he used to, I've been privileged to talk with him and have him share with me the words he's used to try and uplift his new friend.  His heart has always been tender but he has empathy now for others who suffer that blows me away.  On the other hand, he has little patience for those he sees as just "mean."  

    Last weekend brought several "episodes."  There were three nearly back to back and we were disheartened.  We can't understand God's timing, but we are called to trust it.  We are all looking forward to spring break, one more week and we get a change of pace that is much needed.  In the meantime, please pray that Matt releases his fears and gets on his feet.  That's all that's keeping him in that chair right now.

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