Matthew’s Story

Site created on December 19, 2008

Welcome to Matthew Jahner's Caring Bridge page - I am his sister Erin, and I will keep you updated on his condition. On Thursday, December 18, 2008, Matthew was diagnosed with Acute Lymphoblastic Leukemia. Please read the journal and sign the guestbook. Matthew cannot wait to hear from you - keep us in your prayers and thank you for all the support.

Everything started about the middle of November. Matt started to complain about having pain in his ribs. At first we thought maybe he had injured himself playing racquetball but the pain continued. Matt went to the doctor who drew blood and did a physical examination. The blood test came back showing Matt's blood platelet count was much lower than it should be. The range of normal is 150,000-300,000 and Matt only had 61,000. The blood platelets help the blood clot so this meant Matt had a higher risk of severe bleeding. The doctor put Matthew on steroids which would help increase the number of platelets. After Matt returned home, the rib pain continued. On Saturday, December 13, 2008, Matt went fishing and returned home with a fever. His mom took him to the emergency room where they did another blood test and a chest x-ray. This blood test showed Matt's platelet count had dropped to 46,000. Matt was then referred to Dr. Serabi, a hemotologist in Bismarck. On Thursday, December 18, 2008, Matt went to MedCenter One for a bone marrow biopsy. This test came back positive for Acute Lymphoblastic Leukemia. Matt's uncle Pat owns Dickinson Air Service and was able to get a flight for Matt, his mom, and stepdad Levi into Rochester, MN, that night. His dad, and stepmom Katie, drove from Dickinson and picked me (his sister) up in Fargo. We arrived late Thursday night. On Saturday, December 20, 2008, Matt's final diagnosis of Acute Lymphoblastic Leukemia was made and treatments will start on Sunday, December 21, 2008.

Newest Update

Journal entry by Samantha Jahner

About a month ago Matt felt the lump back in his chest. A PET scan was done which showed his lump was back, but the area barely lit up so definitely in the early stages. He had multiple aspirations done of the lump which was able to confirm it was leukemia, but they were never able to get enough cells to run a flow cytometry. His oncologist in Seattle suggested we check out City of Hope in LA or MD Anderson in Houston. Erin along with one of Matt’s previous oncologists from Seattle Children’s, Dr. Lamble, did lots of research and we settled on MD Anderson. Matt, Kathy, and Erin left on the 26th. During his time there so far, he has had another PET scan done, a bone marrow, and appointments to talk treatment options. His bone marrow is clear! and his clonoseq showed 2 cancer cells per million cells. While his doctor seems certain he has his treatment route decided, he plans to meet with some colleagues over the weekend to make sure he isn’t missing a potential option for Matt. He will have a biopsy done of the mass on Monday to hopefully obtain the data of what it consists of and should be able to start treatment Wednesday unless his oncologist decides to go a different route. Matt will be inpatient for 5 to 6 days depending how he tolerates the chemo regimen. They are expecting to give Matt blood and platelet transfusions daily and the other great battle Matt will face is risk of infection. This plan is a 28 day timeframe and he will then have a repeat PET scan and bone marrow completed. From there we will have some things to discuss. Hopefully Ada and I can get down there soon to visit him. Her first birthday is fast approaching and our time together is so special. Ada loves her daddy so much and I am so thankful FaceTime is available to us. We are grateful for you all and your continued positive thoughts and prayers. ❤️

Sam
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