Journal entry by Samantha Jahner —
About a month ago Matt felt the lump back in his chest. A PET scan was done which showed his lump was back, but the area barely lit up so definitely in the early stages. He had multiple aspirations done of the lump which was able to confirm it was leukemia, but they were never able to get enough cells to run a flow cytometry. His oncologist in Seattle suggested we check out City of Hope in LA or MD Anderson in Houston. Erin along with one of Matt’s previous oncologists from Seattle Children’s, Dr. Lamble, did lots of research and we settled on MD Anderson. Matt, Kathy, and Erin left on the 26th. During his time there so far, he has had another PET scan done, a bone marrow, and appointments to talk treatment options. His bone marrow is clear! and his clonoseq showed 2 cancer cells per million cells. While his doctor seems certain he has his treatment route decided, he plans to meet with some colleagues over the weekend to make sure he isn’t missing a potential option for Matt. He will have a biopsy done of the mass on Monday to hopefully obtain the data of what it consists of and should be able to start treatment Wednesday unless his oncologist decides to go a different route. Matt will be inpatient for 5 to 6 days depending how he tolerates the chemo regimen. They are expecting to give Matt blood and platelet transfusions daily and the other great battle Matt will face is risk of infection. This plan is a 28 day timeframe and he will then have a repeat PET scan and bone marrow completed. From there we will have some things to discuss. Hopefully Ada and I can get down there soon to visit him. Her first birthday is fast approaching and our time together is so special. Ada loves her daddy so much and I am so thankful FaceTime is available to us. We are grateful for you all and your continued positive thoughts and prayers. ❤️
Sam