My Story

Matthew Jackson is a warm and caring young man. On August 22, 2008 we found out that he has a Brain Anurysm. It is called an AVF (Arterial Venous Fistula). He is currently on the road to recovery. He is a Senior at Kingston High School and is loved by many.

Journal

Thursday, July 2, 2009 3:55 PM, EDT


Well today is a better day... .within 30 min of me calling the state yesterday i got a call from the school.. and then the tutor came over that night... so matt has hw and he is seeing her for 2 sessions a week.. now if we can just get the math teacher to call and set up we will be set.....

as for sunnyview.. tey are overbooked.. so they are doing the best they can.. i told them 30 min is better then nothing.. since they can do more with him. however... mon and today he had a pt that actually pushed him to do the walking.. and with what i do with him at home he is getting better.... i talked to the pediatricians office and they are giving me a script for a walker for at home.. just like what he uses in therapy so we can do more....

he continues to get better.. and we encourage him to outside his comfort zone.. he went bowling again with some friends this week.. but it was busy there so they ended up renting a movie and all coming over here... he went to bed at 130... good for him.. bad for me.. allergies are bad this week.. getting better but still bad..

well we are going to try a beach this weekend.. its the holiday and we are going on a picnic with the family.. and we need to try to see how hard it will be for when we go to bermuda.. we know what to expect...

i truly appreciate all the well wishes and assistance i get from anybody. i dont want people to think i dont appreciate anything.. it is just such a long road and there have been many speed bumps that just throw me for a loop... but.. things get better everyday.. they just have to go forward and have a step back every so often to start that upward climb again....


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E-MAIL AUTHOR

c28jackson@aol.com

HOSPITAL INFORMATION

NY