My Story

Hi, my name is Matthew and I'm 4 1/2 years old. I have been diagnosed with Mito disease complex l and lll and CIPO(chronic intestinal pseudo obstruction). Please sign my guestbook.

Journal

Sunday, July 5, 2009 11:58 AM, EDT


We are back from our weekend family trip to New Hampshire. Everyone had a wonderful time.  Harry(Matthew's dog) came with us. He was very well behaved the entire time. We went to Story Land on Friday and again on Saturday for a few hours. Matthew was able to ride on his first Kiddie Roller Coaster. He was still too small for it(you had to be 36 inches) but they let him on  anyway. He didn't cry, but said that he never wanted to go on it again. The hotel that we stayed in had a small indoor water park. Bradley and Steven loved it. Matthew took some time, but he eventually walked into the kiddie pool and played for about 15-20 min. He was very cautious and held onto the side and made sure to get out quick if he saw anyone coming near him. We were very proud of him for even getting into the water.

Yesterday we spent the morning going to different covered bridges, taking pictures,  and walking down by the river. We stayed for the local town Parade. Matthew loved waving his flag and getting candy. He didn't like the loud noises from the trucks, bands and drums. He kept his ears covered. We got home around 9 Pm last night. Make sure to check out the pictures on this site and our blog sites.

We did receive an e-mail from Dr. Watkins saying that he spoke to Dr. Meyer and gave her the dose and type of Pancreatic enzymes that he wants Matthew to start again. He said that again he is still working on getting the phone conference set up.

Matthew has been feeling well the entire weekend with the exception of a very distended belly. So far today he has been playing quietly in the living room. I think he needs this down time after our busy weekend.
***Our blog sites with new pictures***


 
http://mightymatthew.blogspot.com

http://nyveggie.blogspot.

Matthew <a href=&quot;http://www.onetruemedia.com/shared?p=2863a1db260db1da0a14df&skin_id=1000&utm_source=otm&utm_medium=image

He's my Son <a href=&quot;http://www.onetruemedia.com/shared?p=71e76b9b3c2cd2c8ddf5ac&skin_id=1704&utm_source=otm&utm_medium=image"

 

 


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Plattsburgh, NY 12901

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E-MAIL AUTHOR

tlcech@charter.net

HOSPITAL INFORMATION

Children's Hospital Boston
300 Longwood Avenue
Boston, MA 02115
United States
(617) 355-6000