My Story

Matthew was diagnosed with a PNET brain tumor on Dec. 13, 2007. He had 5 rounds of chemo followed by a stem cell transplant. 

Relapsed in Jan. '09 - 6 weeks of radiation therapy.

MRI on 4/3/09 showed improvement but disease is still present.  Will start low dose chemo when counts recover.

 

Journal

Tuesday, June 30, 2009 11:01 AM, CDT


Jen took Matthew to physical therapy and the clinic today. It has been 11 days since Matthew's last transfusion and he did not need one today! The numbers aren't too exciting, platelets are 21 which keeps him out of the transfusion range. His platelets on Thursday were 22, so that is good, since it appears they hung on longer than normal. We were excited and hopefull that maybe he has turned a corner with his platelets, we will know soon enough. He goes back on Monday. The rest of his counts are wbc 3.2 and Hgb 10.4.
Matthew is also going to start occupational therapy. I believe he will do that on Mondays. We figured we didn't have enough appiontments in one week so decided to add another! It should help Matthew out a lot. He continues to be well. His hair is growing back and he is beginning to look like a different little boy. We continue to wait for the MRI next month. Cancer teaches you how to wait, but right now he appears to be doing well.
Our golf outing is coming together nicely. Thanks to all who have helped by donating, forming a team, volunteering, etc... As of  today we have 22 teams and I think 20 hole sponsors. We are very pleased with the turnout. Also Matthew's 4th birthday is coming up within 2 weeks, which we are obviously very excited about. Each year, month, week, day, hour, and second we have with him is a victory. That goes for both of our children.
Jeremie

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E-MAIL AUTHOR

jbarr387@yahoo.com

HOSPITAL INFORMATION

Nationwide Children's Hospital
Columbus, OH
United States