Welcome! I am Deborah Wallack, and this is my story, written with the hope that it will inspire those living with mast cell disease or any other chronic illness to always stay positive and know that you can take matters into your own hands to help yourself.
For detailed info regarding Mast cell disorders and how to help yourself, scroll back to the earliest entries of my journal.
I have a very rare illness, called Idiopathic Anaphylaxis (also known as Mast Cell Activation Disorder). It is an illness very difficult to diagnose and mimics another illness called Mastocytosis. Both illnesses have the same symptoms, respond to the same medications, and have the same triggers. The only difference is the source of the illness: Mastocytosis (abbreviated as Masto) is a disease in which one has too many mast cells or has mutated mast cells. Idiopathic Anaphylaxis (abbreviated as IA) is a condition in which one's mast cells are too sensitive for some unknown reason (thus the label idiopathic). The information that you find on my pages will apply to both illnesses and should hopefully help those with either condition!
(More info can be found on my journal pages, which you can link into at the top of this web page!)
Wow! After only one year, my mast cell disorder forum which I founded at www.mastcelldisorders.lefora.com is an extremely active forum with nearly 300 members and over 3500 posts! New members join daily and the forum is filled with wonderfully supportive and friendly people helping each other. I am so glad that I created it!