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Mi historia

the pessimist borrows trouble and the optimist lends encouragement.

I was diagnosed with stage IV neuroblastoma on April 8, 2005 and immediately admitted to UVA hospital in Charlottesville, VA for removal of 4cm tumor on my right adrenal gland.  After 5 rounds of chemo under Sloan Kettering's protocol at UVA I finally transferred my care to NYC at Sloan in September of 05.  I was NED after 3 rounds of chemo on my first MIBG scan July 8, 2005.  We harvested stem cells in September of 2005. I underwent radiation for 7days twice a day in October 2005. Then came the antibodies in October 10/05-10/07 and never became hama positive, so I endured all 13 rounds.  I've remained in remission for 3 years and 9 months but just found out we relapsed in my hips and knees (bone marrow only) on April 7, 2009.  A medi port access is scheduled at UVA hospital with Dr .Eugene McGahren on thursday, April 16th and then heading to Sloan Kettering to receive our chemo on  April 20, 2009.  I have endure 3 rounds of high dose chemo both at UVA and Sloan Kettering since my relapse.  It's been a struggle to overcome the secondary infections that I got during post chemo while my body was immunosupressed and I was trying to get better.  In addition to multiple gram positive and gram negative blood stream infections, I also got a candida tropicalis infection (which is yeast) in my blood stream that landed me in the hospital over 2 months and almost took my life 3 times.  I seem to always prevail even the worst situations.  I have also endured 12 days of radiation since relapse and multiple procedures (medi port placement, removal, bone marrow biopsies, catherizations, a picc line placement, poking and proding constantly for veins that seemed to have crumbled from chemo, fem line placement and removal, art line placement and removal).  I'm here though and I'm feeling good, just finished my first low dose chemo (number 10 for my life) and have 1 more low dose chemo to go then off to scans the beginning of April.  I have one tiny spot left of cancer on my sacrum (lower spine) that we continue to fight and hope to receive the vaccination for neuroblastoma once I'm clean and stay that way for 6 months.  Hopefully that is the answer for this monster of a disease.  Mom will try to keep everyone posted as much as possible, but we're quite busy these days trying to live life.. :) 

Fuente

Kelley Kassay posted a new journal entry, "The holiday's, round 2.".

Well, we got through Thanksgiving.  It was so silently heartbreaking for me though.  I forgave a night out with my friends Wednesday night for a good night's sleep to ... Lea más

Kelley Kassay posted a new journal entry, "The holiday's, round 2.".

Well, we got through Thanksgiving.  It was so silently heartbreaking for me though.  I forgave a night out with my friends Wednesday night for a good night's sleep to ... Lea más

Kelley Kassay posted a new journal entry, "Merry Christmas".

Hi everyone.  I know it's been a while from my last update.  We have been working on some big things in Mason's honor, as well as every other childhood cancer victim.  ... Lea más

Kelley Kassay posted a new journal entry, "OUR BEAUTIFUL ANGELS".

Oh boy, it's been a while.  I know many of you are wondering how we've all been getting by, what we are up to, how does one truly survive the death of a child.. Well, ... Lea más

Kelley Kassay posted a new journal entry, "Can't stand the feeling, missing you so much".

Hi angel boy, It's mommy again, still missing you more than ever.  I hope you are enjoying reuniting with your friend Ryan Reardon up there. He fought long and hard, ... Lea más

Kelley Kassay posted a new journal entry, "It's not funny to trick us".

As the family gathers in the hospital (which is a new location and beautiful btw), we anxiously await for my sister in law Holly to be taken to the OR. She is all prepped ... Lea más

Kelley Kassay posted a new journal entry, "My angel is sending us a blessing tomorrow".

Hi baby boy, Everyday I miss you, but more so today and tomorrow and during times like these when something big is happening in our family and we need you here with us.  ... Lea más

Kelley Kassay posted a new journal entry, "Just a cute update from earlier post".

As I was told by a good friend of mine who can hear Mason speak to her, Marybeth, Mason predicted his little cousin would be here on the 27th of this month.  Since my sis ... Lea más

Kelley Kassay posted a new journal entry.

Hello my sweet son.  Today marks your 3 month angelversary.  I can't express how much I miss you.  I miss your laugh, your smile, your hugs, your jokes, your presence, ... Lea más

Kelley Kassay posted a new journal entry, "First day of middle school, Robbed again".

Today Albemarle County schools started school and Mason should have been starting middle school in the 6th grade.  It was a tough realization for me this morning.  As I ... Lea más

Kelley Kassay posted a new journal entry.

The week started off a bit challenging after a beautiful weekend in VA Beach for a girls weekend with my sweet daughter Monica.  She is growing way to fast before my ... Lea más

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