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My Story

Miles and Mason were born at 25 weeks, 5 days gestation on January 20, 2010. Mason weighed 1 pound, 10 oz and was 13 1/2 inches long and Miles was 1 pound, 9 oz and 12 1/2 inches. Being preemies, both boys faced a lot of challenges early on, mainly diagnosed with chronic lung disease. At two weeks of age, both boys had a PDA ligation, and later we found out they had severed Mason's left vocal cord during the surgery. Mason spent a total of 4 months in the NICU, being weaned off the ventilator, before coming home on oxygen. Miles ended up spending 3 more months in the NICU and 2 months at Our Children's House before finally coming home after being trached and still needing a ventilator 24/7.


Mason has always been tiny even for his adjusted age, and is typically in the 5th percentile. He currently only weighs in at 16 pounds and is now 14 months old (March 2011). On March 29th, (2011) we went for a routine check up with his GI Specialist, who felt his liver under his rib cage.  The next day, we went in for an ultrasound, which confirmed there was a mass in his liver. Over the next few days, we ran various tests including blood tests, an MRI, a CAT scan and a biopsy. On April 6th, we received the official diagnosis of hepatoblastoma, or liver cancer. Mason will have 6 rounds of chemotherapy and surgery to resect the tumor. His first round started the day after diagnosis on April 7th.

We will be forever grateful to Mason's GI Specialist. Had he not questioned his findings during such a routine exam, we would not have discovered this cancer until it was way too late. We've been told hepatoblastoma is pretty rare but has a pretty good success rate when treated with chemo and surgery.  I wanted to start this blog to keep everyone up to date on Mason's progress. Please feel free to check in frequently for updates and keep us in your thoughts!  

Update: Miles went in on March 5th, 2013 for an X-ray, ultrasound, and CT scan to confirm what we thought was sever constipation issues. What we discovered was a large mass on his liver. By Friday, March 8th, 2013, we received an official diagnosis that we are also dealing with hepatoblastoma. The mass is covering over 80% of his liver.  He started the same chemo regimen as Mason did almost 2 years ago. 

 

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M&M Fisk posted a new journal entry, "Milestones and Memories".

Life seems to be gaining momentum by the day. Is that possible? The boys seem to be conquering milestones now faster than ever before. For instance:Mason is now potty ... Read more

M&M Fisk added a new photo.

Charlie Dee signed Miles's Guestbook.

The moment is etched in my memory also: I was in my home office, David called Anne with the news, something in her voice made me go into the kitchen as she said, ... Read more

M&M Fisk posted a new journal entry, "1 Year Reflection".

What a difference a year can make. Exactly one year ago yesterday, we received the news Miles had a huge mass on his liver. It's one of those moments that burn in your ... Read more

Jeffrey Loebl signed Miles's Guestbook.

Dear David and Kathy, Mason and Miles,I do so hope that this current crisis is something that can be fixed and is not serious and will not be a major factor jeopardizing ... Read more

M&M Fisk posted a new journal entry, "Autopilot".

Today had us back in autopilot mode. In fact, I'm probably writing this because old hospital habits die hard and I just feel compelled to get it down on paper.Miles is now ... Read more

Bobbi Purnomo signed Miles's Guestbook.

It sounds like ABA will be a good match for you! What an incredible job to get to get into the minds of children who have difficulty with processing the outside world! ... Read more

missy kesler signed Miles's Guestbook.

POOP POOP POOP, all I can say is at least your neighbor did not walk in on you laying on top of  your 6 yr old while giving her an enema.  He had heard screaming and ... Read more

M&M Fisk posted a new journal entry, "Extra, Extra!".

Today was my first day of ABA (applied  behavioral analysis) therapy. Today was mostly observation. Of course I can never talk specifics (HIPPA and all that) but it felt ... Read more

M&M Fisk posted a new journal entry, "Happy 4th Birthday!".

Yesterday, we celebrated M&M's fourth birthday. I really have a  hard time believing they are 4 years old. I remember their birth day as if it were only ... Read more

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