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July 20, 2013 Completed chemo, scans all clear, NED
Oct 21 Three month scans scheduled
For a few weeks, my knee was swollen and painful. My mom took me to an orthopedist to have it checked out. They took X-rays and were not happy with what they saw. They immediately sent me to the Children’s Hospital of Atlanta to have an MRI performed on my knee. I had to be admitted and they put in an IV and drew my blood. I spent the night in the hospital and the next morning I had the MRI. I waited for a couple of hours and then they took me to do a biopsy on my knee. I remember having to wear a mask that contained “laughing gas”, then the smell changed, and I was asleep. After I woke up, we were finally able to go home.
When we arrived home, I slept with my mom in my parent’s room. I woke up the next morning and I was in a lot of pain. My parents lay in the bed with me and started talking about my diagnosis. They told me that I was going back to the hospital for more tests. I thought they were meaning that I was going to have to have surgery, but then they said that God brings us through everything and we need to trust. My daddy was tearing up and he said that I have bone cancer. I began to cry because I was thinking that cancer is very serious and I was thinking about how my Papa (my dad's dad) had just died from cancer. I did not want to die. My daddy explained that 80% live and the odds are more in my favor. My parents asked me if I wanted to tell any of my friends face to face, so I called several of my friends.
At this point, I feel a little doubtful and I am scared. I am scared that I am going to die. I am scared of the needles, the procedures, and what is actually going to happen to me. I am worried that someone may make a mistake in my procedures and I may die. I am afraid of not having enough to eat and being hungry all the time. I am afraid that I am going to forget everything that I know and have learned. I am afraid of losing my friends. I am not going to be at school a lot and I will not be in the know. I am afraid that I am going to flunk 6th grade. I'm afraid DFCS is going to take me away from my parents because I've missed so much school. I am afraid that my foster sister will not care about me and will take advantage of the situation. I am afraid that I am not going to be able to walk again. I am going to have metal in my leg. I am afraid that the port or IV’s will mess up my veins.
I am glad to have friends and family. I like to see all the support on Facebook for me. I hope my cancer is not as bad as my Papa or Alexa.
Sep 30, 2013 7:16am
Today ends Childhood Cancer Awareness Month for the nation and now officially for Georgia !Thank you to everyone who so generously supported Rally and Mary’s 46 Faces goal to get us to $999! (Someone gave me a $100 check to mail in.) It’s never too late if you’d still like to give: http://rallyfoundation.org/donate/the46faces/7435/rally_with_mary
As I continue to process our past year and “adjust” to Mary’s, and our, new normal, Mary is becoming my hero even more. I am constantly amazed at her attitude and how she just does what she has to do now, without complaining or feeling sorry for herself. She wants to experience life and she doesn’t let it slow her down.
A couple weeks ago her leg was completely rebuilt because her range of motion and how well she points her foot have become lots better. Now with her more compact leg, she will begin regular PT a little closer to home, at a Town Center office.
Thursday night Lost Mountain Middle School kicked off Rally Week with a Braves game. We and other Rally families led the student parade around the field before the game, and Mary got to say “Play Ball!” to start the game. It was a great night! Last year Lost Mountain students and community raised about $9000 for Rally Foundation and childhood cancer research! One of the Lost Mountain teachers, Jennifer Dawson, is dedicated to this cause and really leads the effort. She will take the day off next Wednesday and sit outside the school to collect drive-up donations. Thank you Miss Dawson for your outstanding personal commitment!
In closing, I'd like to post the names of kids who have died recently from childhood cancer. What is supposed to be rare, feels much more real when you think of specific children and the families attached to them.
Drew Thomas Martin
Emily Del Vecchio
Emma Faith Fulmer
Nathan Noel Burgess
Nazar Nicholas Reamer
Sarah Maria Brauser Hays
Tanner Tawnya Phillips
Alicia, Tray, Mary and Will
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