Marie Mello's Journal
Feeling a little better.
Written Feb 18, 2013 2:14pmI went to the hospital on the 15th and was there from morning until evening. I found out that I have a HUGE blockage from all of the tests- it seemed to have shut my bowels down and I had stools throughout my entire colon, and it was causing me to feel extremely sick and not well.
I have to do SEVERAL enemas and have already done some...I am feeling much better today. I am not as nauseas and finally able to eat a small amount. I still bloat up with swelling and pain when I eat normal foods, but I am doing my best. I don't have much money left for Ensure Plus, so I am having a hard time buying it, but that's ALL that really is able to comfort me and not cause such severe pains.
The hospital wanted to keep me, because I couldn't seem to regulate the pain at all, and was in such distress. I finally got the nerve to attempt to do the enemas myself at home, so that I was more comfortable, and they finally let me leave.
I have been SO nauseas that I haven't been able to log onto my phone or computer at all....it seemed like I would get so dizzy and nauseas that it felt like I was on a tipsy topsy boat! It was horrible. I am so happy to be able to finally log on and let my dear friends know that I am doing better today and not in as much pain and agony.
I have problems with my blood work, that needs to be re-evaluated. I have crazy liver enzymes, have some "iffy" problems with my lymphocytes, my neutrophils and other issues. I noticed I have a new lump in my breast that HURTS really badly, and although I had it checked out a few months ago, it seems to be growing, so I need to get that checked out soon, and just for piece of mind may have it taken out...I am not the "wait and see" kind of girl, not after all I have gone through with my health...I like to be proactive and get the lumps removed before waiting to see if they turn into something worse. I wanted this one out a few months ago, but the surgeon wanted to "see" what happens and now it's growing, so I am ready to get a new breast surgeon and have this removed. I also have a suspicious "lung nodule" which is a small "spot" on my left lung that needs to be re-evaluated soon, so I pray that they aren't linked together and something more than just a regular old "lump"....I would be so disappointed, because since the mammogram in October, I have had constant pain and the swelling in my lymph nodes on that side are NOT going down, they are actually getting worse than previously, so it's time to take control of my body and let it know who's boss! :)
Well, I hope this helps others who have gone through some of the same things, and now know that I WILL get better, no matter what, I will kick these diseases in the behind, and will conquer my illnesses. I am looking forward to being healthy again and not in as much pain. I look forward to the day I am able to just get up and go somewhere and not have to worry about my pain in my stomach happening while out, and ruining my quality time, or worrying about other pain and problems...I know I will feel better after my surgeries.
Pain and Problems from Tests!!
Written Feb 14, 2013 2:13pmI had my FULL set of Several tests: AnoRectal Physiology done on Tuesday, and since then, I have had SEVERE sharp pains in my lower abdomen, (not localized, but ALL over the lower half) and discharge that smells terrible, and haven't been able to have a BM since. The pain feels like a sharp tearing feeling...it doesn't go away at all, and is constant.
During the test I had problems and felt like TEETH were pulling out of my bottom when they pulled two of the six probes out....It was SOOOOO sharp!!! I said OWW several times, and my surgeon is EXCELLENT, and was very attentive, but it was really later on that day that I started feeling really SICK.
I have really bad nausea, extreme dizziness (worse than usual), headache that won't go away (usually excederine mirgraine works), feeling very tipsy, like I could tip over, and even HAVE tipped over several times, can't eat (which is common for me, but I usually at least can take a few bites a day of some kind of food) and even having trouble drinking ensure.
I'm worried because the sites on google all say NO complications can be expected, but I am experiencing very terrible issues. Its been two days and it's not getting better. My van was taken yesterday, so looks like no ride to the hospital if that's what it came down to....which I really do NOT want to go anyway.....
I do know this: He inflated the balloon probe to well over 250....whatever that means....he inflated it and told me to tell him when I felt like I had to go potty....I hardly got to that point....then he just stopped and told me I have a huge rectocele....and it has to be repaired before having my colon removed......
Is this NORMAL? Have any of you had a reaction from any of these tests? I am really worried and certainly don't want to go the hospital if it's not necessary. The nausea is TERRIBLE and just won't go away.....my heart feels like it is racing, and I feel very warm but without a fever....I go from freezing to hot....I even have trouble being on the computer for too long because it makes me so dizzy, that's why I have hardly been on, because I log on and feel like I could throw up. :(
Ugh.....this is terrible.....and I am not sure if this is normal?! Or if something ruptured?! Which all the sites I have read don't say ANYTHING about that happening......
Very Upset and out of sorts. :(
Written Feb 14, 2013 11:09amNot doing so good.
I was able to see the surgeon and had MANY tests done- had the complete set of Ano-Rectal Physiology. I am still in the midst of figuring out pain relief if you can believe that! Since the tests I had done I have a "tearing" sensation in my lower abdomen...not sure what is going on, but have intense pain. Very strange!!
I am going to be scheduled for Rectocele repair done through my anus and rectum....and THEN after I heal I will have my huge surgery after I am healed....they will hopefully only need to take out my colon and attach my small intestine to my rectum, if all goes well.
I am sorry I haven't been on much....I have been in pain. And nauseas and sweaty....it's strange. I also lost my van- I didn't have money to pay for it, and the company was unwilling to work with me and came and towed it yesterday. I am really in a huge bind and now don't have a way to get around. My life is not really that great right now. NOW I not only need aftercare for my surgery and money for that, but ALSO $1000 downpayment for a NEW van!! I was paying $380 per month and now got it taken.....EIGHT years of business and THREE cars bought from that auto loan company and they choose to take it now?! I am mortified. :(((
I couldn't be more stressed out if I tried and this was the icing on the cake. I am so upset and sick. And now my pain dr. is acting like a fool and I need to get OFF Butrans patch but he refuses to call me back. :(
Life is not all that wonderful right now...I am so stressed out and don't know what to do. I am sorry I don't have better news. I wish I was happy but I am not only suffering internally, but also externally...My whole life is flipped upside down in a matter of two days....I was praying for surgery sooner, but my rectocele is HUGE and they have to repair that first, because that will impede my colon surgery and I won't have a standing chance to get off the ostomy bag once I get one...so I am glad he's being thorough, but I wish it was quicker than this...Now my surgery won't be until 2-4 months. :( I will have to suffer with intense pain until then I guess.
HAPPY VALENTINE'S DAY.