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Marek’s Story

Thank you for all of your support throughout Marek's journey. The benefit was a huge success, your presence and contributions meant so much. Thank you for showing us one of the best days of our lives, one we will never ever forget! Your prayers and outpouring of love, the meals brought to our doorstep, the kind and uplifting words, just reading my journal entries and in turn, sharing our tears of happiness and sadness, has been incredibly moving. We love each and every one of you more than words can describe.
Thank you.

Following a healthy pregnancy, the Stapleton family was blessed with a perfect miracle: baby Marek, born 12 days overdue following induction on July 30, 2012.  He instantly melted the hearts of his Mommy (Krissy), Daddy (Jason) and two big sisters, Hailee (6.5 yrs) and Piper (1.5 yrs).  24 hours after his birth we noticed a small enlarged area on the top of his tiny left foot.  

Concerned, we consulted copious amounts of doctors throughout the next six weeks of his life, bouncing from one referral to the next.  His diagnosis changed from a possible sprain resulting from delivery to a vascular malformation, but no one suspected the terrible news we received the night of September 19, 2012 - just seven weeks and one day after his birth.  

We were greeted in the recovery room at the Mayo Clinic shortly after Marek's biopsy with some sad news.  The pathology report had come back with a shocking diagnosis:  Our sweet baby Marek had a rare soft tissue cancer called Infantile Fibro Sarcoma (IFS).  This cancer effects roughly 7/1,000,000 infants (yes, you read that right)!  

We invite you to follow us through our journey of events and emotions including tests, treatment, surgery, love, anger, fear and courage with support, compassion and prayer.  We have a goal to remain honest and up front in regards to our feelings and experiences as we partake in this wild journey of treatment and healing with our sweet baby Marek.  

With so much love, 

The Stapleton Family