My Story

Welcome! Amanda's dad & I were thrilled to be expecting after 2 yrs of infertility & then excited again in early Sept to discover we were having a little girl to round out our family of four. A follow up ultrasound diagnosed her with a CHD.
So our we're now on an unexpected journey. Amanda's full story and our journal updates are available to all.

Journal

Wednesday, June 24, 2009 8:07 PM, CDT


Hello to all,

June has been a great month for our little family.  Amanda saw the cardiologist and is cleared for one more year.  This time I didn't immediately panic thinking "a whole year without reasurrance that she's doing ok." 

Amanda in the meantime  loves her Noah's art class and climbing, singing, and playing with her brother.  We went to a family wedding in Williamsburg, VA (congrats Kyle & Laura) and she was able to meet some extended family for the first time.  We all then went on a vacation to Maggie Valley with my brother and his family and had a great week.

These posts get further and further between as life moves forward and is more and more normal.  I continue to find support in a local group Levine Cardiac Kids and with my awesome cousin Kristen, and a yahoo group and pdheart through the children's heart information network. 

We are enjoying this summer and doing vacations and planning to host activities(which we've gotten out of the habit of doing for a bit).  Jed will start first grade next year (turned 7 on Sat!) and Amanda will be starting preschool 3 days a week in Sept.  I know she is ready and think I am too. 

On a Jed note...we believe that he's out of the woods for a possible 3rd eye surgery (was coming up repeatedly through spring)   He is now wearing bifocals and the doc feels this should make the difference to clear up lingering concerns.  We spent May trying to keep him lying low and from harm as he recovered from a broken collar bone, and watched him grow and thrive in Kindergarden.   Thank you Mrs. Card for a great year and thank you Mrs. Streeter for such a great year last year in TK.  It was a great transitional stepping stone for Jed and we're so happy we chose it for him.

I hope all of you are enjoying a wonderful start to the summer as well.

Maggie

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