My Story

Welcome to my CaringBridge site. I have Spinal Muscular Atrophy (SMA) type 1. I created this to keep my friends and family updated about me. My Story is a little introduction about me. Be sure to read my journal, view my pictures, and MAKE SURE YOU WRITE ME A NOTE IN MY GUESTBOOK!
I'd like to know that you were here and it would make me SMILE! HUGS!




Hi! My name is Madison Rose Reed. I was born on February 4th, 1997. I am 14 years old now. I have Spinal Muscular Atrophy (SMA) type 1. I could have died at 2 years old but I didn't. My parents gave me a chance to live and didn't listen to most of the doctors. I have a feeding tube because I can't swallow. I use a bipap machine at night and sometimes all the time when I'm sick. My muscles don't work right- they are weak and floppy. My brain is normal though.  I'm just like other kids.

I like to sing. 
I LOVE the band & Nick show Big Time Rush! I also like the band New Hollow. Some of my other favorite singers are Hilary Duff, Miley Cyrus, Demi Lovato, Selena Gomez, Raven and Ally and AJ.   

I like to do the computer especially virtual worlds like VFK (Virtual Family Kingdom), MVK (My Virtual Kingdom) & SmallWorlds. My favorite & the BEST virtual world is VMK or Virtual Magic Kingdom! Disney closed VMK down and I want it back! There is NO other game like it! I do alot of Nancy Drew computer games too.

I like to watch BIG TIME RUSH, American Idol, America's Next Top Model, Dancing With The Stars, Top Chef, and lots of other shows on BRAVO, DISNEY, HGTV, and Nickelodeon.

I will write about all of this stuff here on my own blog. I decided to create my own blog now so you can see that I'm just like other kids.I have the same thoughts and feelings but I just can't move and do the same things other kids can do.   You can visit my other web site too at
www.miracleformadison.org

 

Feed

Annette Reed posted a new journal entry, "I'm 17 now!".

Hi!I JUST TURNED 17 YEARS OLD LAST WEEK!!!!!!!!!!!!!!!! Despite not getting to go to Disney On Ice because of all the snow, ice and freezing temperatures, I still had a ... Read more

Cindy Henry signed Madison's Guestbook.

Awesome update Madison!  Sounds like last year was amazing and I hope this year is extra special too!  Hugs Read more

kim sykora signed Madison's Guestbook.

Loved reading about your awesome year.  Keep up with updating!  Can't wait to read about your next adventures.  xoxox Read more

Hugs, JungleDudette signed Madison's Guestbook.

Princessmadiro is back at VMK?! That is the greatest news ever! I can't wait to check out the new edition of the best virtual kingdom in all the world, thank you so much ... Read more

Colleen Schneider signed Madison's Guestbook.

Hello Ice Princess Madison, I love your beautiful Frozen cake and decorations. And you look so beautiful in that photo! What a cool theme-ha ha! Glad to hear you had ... Read more

Jason, Monica, Blake & Nolan signed Madison's Guestbook.

This made my morning!!! What an awesome & amazing year! Looking forward to hearing how much fun you will have this year! Cant wait to see you this summer! Love & ... Read more

Jen Peters (Ella and Grayson's mom) signed Madison's Guestbook.

Wonderful update Madison!!! So glad you had a wonderful birthday ;) Read more

Beth Pruitt signed Madison's Guestbook.

Great entry for a great year!  I bet this year will be the best yet!  Thanks for the update and hope to see you and your family this summer sometime.  Happy Belated ... Read more

Celia Jean + Calypso Odessa Hope signed Madison's Guestbook.

Dang little lady, you have been busy!! So fun to see you are getting out there and taking life by the horns. People like yourself are the ones that give me hope and ... Read more

The Dahl Family signed Madison's Guestbook.

Madison,Even though we keep in touch through FB and online games, I loved reading all about your year in one place! What a year you've had! You are truly a miracle in so ... Read more

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