Welcome to my CaringBridge site. I have Spinal Muscular Atrophy (SMA) type 1. I created this to keep my friends and family updated about me. My Story is a little introduction about me. Be sure to read my journal, view my pictures, and MAKE SURE YOU WRITE ME A NOTE IN MY GUESTBOOK!
I'd like to know that you were here and it would make me SMILE! HUGS!
Hi! My name is Madison Rose Reed. I was born on February 4th, 1997. I am 14 years old now. I have Spinal Muscular Atrophy (SMA) type 1. I could have died at 2 years old but I didn't. My parents gave me a chance to live and didn't listen to most of the doctors. I have a feeding tube because I can't swallow. I use a bipap machine at night and sometimes all the time when I'm sick. My muscles don't work right- they are weak and floppy. My brain is normal though. I'm just like other kids.
I like to sing. I LOVE the band & Nick show Big Time Rush! I also like the band New Hollow. Some of my other favorite singers are Hilary Duff, Miley Cyrus, Demi Lovato, Selena Gomez, Raven and Ally and AJ.
I like to do the computer especially virtual worlds like VFK (Virtual Family Kingdom), MVK (My Virtual Kingdom) & SmallWorlds. My favorite & the BEST virtual world is VMK or Virtual Magic Kingdom! Disney closed VMK down and I want it back! There is NO other game like it! I do alot of Nancy Drew computer games too.
I like to watch BIG TIME RUSH, American Idol, America's Next Top Model, Dancing With The Stars, Top Chef, and lots of other shows on BRAVO, DISNEY, HGTV, and Nickelodeon.
I will write about all of this stuff here on my own blog. I decided to create my own blog now so you can see that I'm just like other kids.I have the same thoughts and feelings but I just can't move and do the same things other kids can do. You can visit my other web site too at www.miracleformadison.org
Sorry again for not writing here very much but it's easier for me to write on facebook. I'm always posting on facebook and twitter but mostly about BIG TIME RUSH! Speaking of Big Time Rush...I DID get to go to one more concert and meet them on 9-11-12 in Moline, IL. The drive was about 8 hours but worth it! It was the best concert ever! I could SEE most of it too. James told security to make sure I could see! My mom bought front row seats but they wouldn't let me sit there. I ended up still in the front row but on the end. As long as no one stood in front of me it was ok. My mom still had to do some work to make it happen. She ended up giving 2 girls in the second row our tickets in the first row because they kept coming up to the front and standing in front of me. They were so happy and so was I because my mom could back my chair up and turn me sideways and I could see so much better. The BEST part of the concert was when the guys came down into the crowd to sing, Kendall stopped and sang right in my face. He and Logan stopped back again before going back up on stage and kissed me! I love them so much! I can't wait to see them again! Don't you think they should come sing to me for my SWEET 16 birthday February 4th? I do!
I got to go to the zoo one day to see some of the baby animals in the promotions building. They were all so cute! It was raining that day so I couldn't go into the zoo itself. I wanted to go to Boo at the Zoo but couldn't because it was still raining when we got done. But a few weeks ago I DID get to go to Wild Lights at the Zoo! I haven't been there to see the lights in a very long time. It was on one of those warm December days we had. It was so pretty and I had fun seeing some of the animals!
I'm doing ok. I'm not getting any strength or movement back. My tone is alot less! Some days I feel weaker. I just wish I could be the way I was.
Merry Christmas and Happy New Year! I'm sure you can guess what I want for Christmas right? LOL!