My Story

Welcome to my CaringBridge site. I have Spinal Muscular Atrophy (SMA) type 1. I created this to keep my friends and family updated about me. My Story is a little introduction about me. Be sure to read my journal, view my pictures, and MAKE SURE YOU WRITE ME A NOTE IN MY GUESTBOOK!
I'd like to know that you were here and it would make me SMILE! HUGS!


Journal

Tuesday, June 30, 2009 9:22 PM, EDT


Hi!

Happy Birthday to my nurse Angie (yesterday) and my Dada (tomorrow)!!!!!!

Disney Day 2- tuesday:
I got up at 7AM (I know- can you believe it?) because I had to get to the Magic Kingdom by 11:30AM! You'll never guess why, but the reason I got up so early was because Disney Jan arranged for me to see the castle suite room! WOOT! I made it in plenty of time! The castle suite was beautiful! I loved the beds because they looked just like the VMK beds in princessmadiro's castle suite room. I brought princessmadiro and she was finally back HOME!  THANK YOU Disney Jan and our tour guide Jennae!!!!

Oh yeah- a few days before I left to go to disney I got a phone call from one of my VMK friends Aengus. He told me he was going to go to disney too and meet me there. We were supposed to meet when I was going to go in October but I was too sick. He SURPRISED me- I never thought he
would go. I SCREAMED! Anyway, I met Aengus for the first time on this day and he got to tour the castle suite with me just like we did on VMK!!!! 

Brittany- (you remember she works at disney) got to come and see the castle suite with me too. She never got to see it till she came with me.  Later I got to meet her boyfriend who is soooo nice! He works at disney too.

After the tour I got to meet Tinkerbell, Fawn, Silvermist, Cinderella, Sleeping Beauty, Belle, Mickey and Minnie. Thank you again Disney Jan for getting me in.

Then I went on all my favorite rides with Aengus, Brittany, Felipe, Angie, Aunt Shell, Jan  and mommy until the WISHES fireworks! I didn't want to leave!
It was a magical day! (Pictures added)
to be continued...

2 weekends ago I went to the FSMA conference in Cincinnati. I saw William finally and lots of other kids.
The carnival was the best!

I got to go to the zoo here but I didn't see the baby elephant yet. :( I might go back tomorrow. Chandlar is coming over! YAY- I haven't seen her forever!

Ok I'm tired- nite nite!

Love,
Madison
 

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HOSPITAL INFORMATION

Nationwide Children's Hospital
700 Children's Drive
Columbus, OH 43205
United States
(614) 722-2000