My Story

 



Madison is a beautiful 2 year old who was unfortunately diagnosed with brain cancer on July 6, 2008. She had a seizure and then became unresponsive on the morning of July 6 and the ambulance brought her to Hutchinson Area Health Care. A CT scan was done there and it was discovered that she had fluid on her brain, which could be caused by a tumor blocking the fluid. She was airlifted to Childrens Hospital and Clinics in Minneapolis. An MRI was done and it was determined that she did in fact have a tumor in her central nervous system (the brain and spine). A shunt was inserted into her head to drain the hyrocephalus and she also had surgery to remove a portion of the tumor.
Madison was put on a feeding tube due to the chemotherapy being in control of her appetite. She started out with a double lumin hickman and then progressed up to a port-a-cath. Madison than underwent chemotherapy and 3 stem cell infusions during a period of 8 months. The MRI showed that the tumor was no longer visible. On April 18, 2009, Madison had another seizure and she was then again transported to Hutchinson and shortly after she was airlifted to Minneapolis Childrens. Another MRI showed that the tumor had grown back very rapidly. Here Madison suffered 8 more seizures in the next week.  There were only 2 choices for us to choose from; a new treatment plan would need to be planned (and the chances of a cure are slim to none) or we could let the tumor run its course.
The first difficult decision was made on April 21st and we decided on doing radiation and chemotherapy in the hopes of cure but the tumor progressed too much too fast in a weekends time when another difficult decision was made on April 26th to let her go. We brought her home on the 27th to begin hospice care and she passed away on May 6, 2009 (one day after her third birthday.)

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Amber Kautz posted a new journal entry.

I have not been on here for so long. Today is 2 years since we noticed the tumor was back and at about this time that day I was on the phone with 911. It was her very last ... Read more

Amber Kautz posted a new journal entry.

Hello Everyone.....it has been quite some time since I have updated. Sorry about that. I am still going to school fulltime in St. Cloud and the semester will come to an ... Read more

Amber Kautz posted a new journal entry.

Hi Everyone, I know it has been so long since I have written last. I started going back to school this past week at St Cloud State. If everything turns out correctly I can ... Read more

Amber Kautz posted a new journal entry.

Remember to REMEMBER, CELEBRATE AND FIGHT BACKThis Friday is the Relay for Life - JUNE 25Please come join my team and others as we help cure cancer and save lives. We ... Read more

Amber Kautz posted a new journal entry.

The order for the madison tshirts are going in on June 5th.  Absolutely no later than that. They are $11 for XL and smaller and $15 for 2 and 3 XL. If you are wanting ... Read more

Amber Kautz posted a new journal entry.

I can't believe that it has been a year already. It feels like just yesterday I was holding her in my arms as she was passing away. She died at 11:50 PM. The angel wing ... Read more

Amber Kautz posted a new journal entry.

Happy Birthday Madison!!! "Remember Me" (song by Deanna Edwards) Remember me whenever you see a sunrise,Remember me whenever you see a star,Remember me whenever ... Read more

Amber Kautz posted a new journal entry.

Today was the one year mark of when we knew that the tumor was back. A year ago today Madison started siezing. In a matter of minutes she lost most of her senses. she ... Read more

Amber Kautz posted a new journal entry.

Today, Kirra flew up to heaven to be with God, Madison and all the other angels in the sky. She passed away at about 1:10 in the afternoon. She seemed very peaceful and in ... Read more

Amber Kautz posted a new journal entry.

I have some sad news for those of you who have been keeping up with Kirra O’Connor (Madison’s friend). For those of you who are not aware of her, she came into the ... Read more

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