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My Story

 



Madison is a beautiful 2 year old who was unfortunately diagnosed with brain cancer on July 6, 2008. She had a seizure and then became unresponsive on the morning of July 6 and the ambulance brought her to Hutchinson Area Health Care. A CT scan was done there and it was discovered that she had fluid on her brain, which could be caused by a tumor blocking the fluid. She was airlifted to Childrens Hospital and Clinics in Minneapolis. An MRI was done and it was determined that she did in fact have a tumor in her central nervous system (the brain and spine). A shunt was inserted into her head to drain the hyrocephalus and she also had surgery to remove a portion of the tumor.
Madison was put on a feeding tube due to the chemotherapy being in control of her appetite. She started out with a double lumin hickman and then progressed up to a port-a-cath. Madison than underwent chemotherapy and 3 stem cell infusions during a period of 8 months. The MRI showed that the tumor was no longer visible. On April 18, 2009, Madison had another seizure and she was then again transported to Hutchinson and shortly after she was airlifted to Minneapolis Childrens. Another MRI showed that the tumor had grown back very rapidly. Here Madison suffered 8 more seizures in the next week.  There were only 2 choices for us to choose from; a new treatment plan would need to be planned (and the chances of a cure are slim to none) or we could let the tumor run its course.
The first difficult decision was made on April 21st and we decided on doing radiation and chemotherapy in the hopes of cure but the tumor progressed too much too fast in a weekends time when another difficult decision was made on April 26th to let her go. We brought her home on the 27th to begin hospice care and she passed away on May 6, 2009 (one day after her third birthday.)

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Amber Kautz posted a new journal entry.

Happy Birthday to my sweet baby girl. Mommy loves and misses you. I can't believe that you would have 7 candles on your birthday today. I still remember your last birthday ... Read more

Amber Kautz posted a new journal entry.

Happy Birthday to my sweet baby girl. Mommy loves and misses you. I can't believe that you would have 7 candles on your birthday today. I still remember your last birthday ... Read more

Amber Kautz posted a new journal entry, "Happy Birthday and Angel Day Madison!!!!".

It was a busy, yet very difficult weekend. On Saturday, May 5 Madison celebrated her 6th birthday in Heaven. I can't even imagine the amazing day she had. In Elk River, we ... Read more

Amber Kautz posted a new journal entry.

Happy Holidays Everyone, Hope all is going well for everyone?! Things are good for me. My job at Becker Furniture World is going good. I now live in Elk River with Travis ... Read more

Amber Kautz posted a new journal entry, "Children of the Fight".

I have the site that I talked about in my last entry up and going. I have decided to not use facebook since some people don't have facebook. Go to ... Read more

Amber Kautz posted a new journal entry.

I would like to try something to help raise awareness of childhood cancer. I want to do this through facebook (at least to start out to see if it goes well than I may or ... Read more

Amber Kautz posted a new journal entry.

How is everyone today? I hope all is well. Things are going pretty good on this side of the fence. The biggest news that I have for you is Madison now has another cousin. ... Read more

Amber Kautz posted a new journal entry.

We have lost a dear supporter of Madison and my family... Ethel Hess passed away a few days ago after being on hospice for a couple weeks. My understanding is that she ... Read more

Amber Kautz posted a new journal entry.

Today it has been 3 years since Madison started the fight for her life. I can't believe that it has been that long. It feels like two weeks ago she got sick and yesterday ... Read more

Amber Kautz posted a new journal entry.

A Birthday In Heaven© 2005 Written by Kris Smith I heard you crying yesterdayAnd felt your heart-sent loveSo I’m sending you this messageNow, from Heaven up ... Read more

Amber Kautz posted a new journal entry.

Everyone is invited to help Amber celebrate the accomplishment of graduating from college and to help remember Madison for her 5th (Golden) birthday and the day she went ... Read more

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