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My Story

My name is Lydia Anne Fiesel. I was born on October 26, 2002. I was born 3 weeks early, but I had to stay in the hospital because my sugar dropped. After 2 months, I was not gaining weight. We found out that I was aspirating and that I had Grade 3 reflux. At 5 months old, I had my first seizure.



My seizures looked like infantile spasms, but it turned out they were benign myoclonic seizures. At 8 months, I got a G-tube in order to gain weight. After a week of having the G-tube, I began gaining weight and my seizures stopped. Today, I am healthy and happy. I am developmentally delayed, and I recently got a diagnosis of cerebral palsey. We have done many tests, but we still do not have a definite, well-defined diagnosis. I can walk in a gait trainer, and I laugh like crazy. Our motto around our house is "Day by Day!"

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Kim Fiesel posted a new journal entry.

Can't believe it has been over 2 months since I have updated.  Just means all is well.  Well, until Monday.  Little Lydia, who doesn't walk, managed to fracture her ... Read more

Doug Vail signed Lydia's Guestbook.

You have always been and will always be my favorite munchkin!! Love you kiddo.                      Grampa Doug Read more

Debbie stang signed Lydia's Guestbook.

Bummer.  Best of luck in the weeks ahead. Yes, she is a trooper. Hope your family had a wonderful holiday season. Read more

Sue Lovgren signed Lydia's Guestbook.

Lydia certainly is a trooper and has an awesome spirit. We are so fortunate that her parents have shared her with us this past year and a half. We enjoy her contagious ... Read more

Lisa Giebink signed Lydia's Guestbook.

oh my goodness!  What a trooper Lydia is!   And you as well.   I hope that all goes well in the next 4 weeks, and that the growth plates will heal well!     ... Read more

Maria Gibbons signed Lydia's Guestbook.

Eileen told me what happened- that really sucks! Hope your cutie is feeling better soon! Love Maria Read more

Nena Johnson signed Lydia's Guestbook.

Oh goodness Liddy Lou!  What a crazy bump in the road!  Crossing my fingers the next four weeks go by smoothly for you and your mama.  Thinking of you as always.  Much ... Read more

Kara Matson signed Lydia's Guestbook.

Oh, Liddy.  You are a little trooper.  We love you to pieces.  Get better quick, we know you will!  Love, Kara, Robbie and Blake Read more

Kim Fiesel posted a new journal entry.

Can't believe it has been over 2 months since I have updated.  Just means all is well.  Well, until Monday.  Little Lydia, who doesn't walk, managed to fracture her ... Read more

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