My name is Lydia Anne Fiesel. I was born on October 26, 2002. I was born 3 weeks early, but I had to stay in the hospital because my sugar dropped. After 2 months, I was not gaining weight. We found out that I was aspirating and that I had Grade 3 reflux. At 5 months old, I had my first seizure.
My seizures looked like infantile spasms, but it turned out they were benign myoclonic seizures. At 8 months, I got a G-tube in order to gain weight. After a week of having the G-tube, I began gaining weight and my seizures stopped. Today, I am healthy and happy. I am developmentally delayed, and I recently got a diagnosis of cerebral palsey. We have done many tests, but we still do not have a definite, well-defined diagnosis. I can walk in a gait trainer, and I laugh like crazy. Our motto around our house is "Day by Day!"