My Story

Luke's CaringBridge site has been created to keep friends and family updated.

Luke was born weighing 9 lbs and 9 ounces on 10/8/2007 and stopped breathing during a feeding on 1/3/2008. He was taken by amubulance and then admitted to the PICU at Children's Mercy hospital.

Journal

Friday, July 3, 2009 8:33 PM, CDT


Had a good day with Jenn; she helped me organize my school stuff and rearrange.  Probably wore her out!

Luke is doing ok.  He's still running an off and on low grade fever and today he's had diarrhea twice.  Still low on the wet diapers.  His dr wants us to give some albuterol treatments to help loosen stuff up, but he HATES them so much, that I'm not going to do it unless he's really struggling.  He hasn't been coughing as much today.  I don't know if they really know what to do sometimes...it seems like I've called them an awful lot this week!  I'll discuss it with the dr on Monday.

He's had some more gagging today and desats; probably due to the gunk he's trying to cough up.  He's also had 2 times of low heart rate (56 or so) when he's been asleep; not sure what that is all about.

A positive; we meet with the caseworker for the TA waiver on Thursday to discuss what we want done for Luke and his care.  Pray that we can reach an agreement that fits our schedule and lifestyle.

We'll be taking it easy over the weekend; no big plans.

Happy 4th of July to everyone!!!  Praise God for our Freedom!

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HOSPITAL INFORMATION

Children's Mercy Hospital
Kansas City, MO